News from Scotland

Weird that he appears not to blindly trust Wessely, who seems OK with this and probably reassures anyone who wants to hear that this is a problem perfectly under control.

 

I still think of Sharpe and his 'boom time' for business, and that was before long covid. They must still be contemplating the pounds that could roll in. Though this time the sheer weight of numbers is likely to show up the emperors new clothes for what they are.

 

Lotto boost for ME group

https://www.dng24.co.uk/lotto-boost-for-me-group/

 

Merged thread: Women's Health Plan

pdf of report here

https://www.gov.scot/binaries/content/documents/govscot/publications/strategy-plan/2021/08/womens-health-plan/documents/womens-health-plan-plan-2021-2024/womens-health-plan-plan-2021-2024/govscot:document/womens-health-plan-plan-2021-2024.pdf

taken from
CSP responds to new women’s health plan for Scotland:
https://www.csp.org.uk/news/2021-08-23-csp-responds-new-womens-health-plan-scotland

 

It was discussed on Friday on bbc radio Scotland together with the paralympics. I caught a tiny bit when I was driving.

Women's health had many stories of late diagnosis etc

Whole show link here

https://www.bbc.co.uk/sounds/play/m000yvdc

 

readers letter in Edinburgh News

"
Give long Covid care to ME sufferers

It was good to learn that those with long Covid will get ongoing support from the NHS and government in the form of £100 million investment, ''£30 million of which will go towards an enhanced service for general practice to support long Covid care''.

The symptoms of long Covid are virtually identical to those of Myalgic Encephalomyelitis and yet, it would appear that those who have been diagnosed with ME get little support if any, other than psychiatric or relaxation techniques.

I recall many patients with ME being unable to get disability allowance and suchlike, and there are very few specialists in the UK and no adequate treatment for the majority.

Why is there such a vast gap between care and support from the government and NHS that will be offered to long Covid patients and so little for ME patients, when the symptoms appear to be one and the same?

Elaine Pomeransky, Edinburgh."

 

National Advisory Committee for Neurological Conditions minutes: August 2021

https://www.gov.scot/publications/n...-neurological-conditions-minutes-august-2021/

 

website funded by Scottish Government

https://www.neurosymptoms.org/en_US/symptoms/common-associated-symptoms/fatigue/

See this thread:
Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

 

And there's this at the very bottom of the page:

One quack supporting another.

 

I've just highlighted this to ME Action Scotland - they are currently working on updating guidance post NICE.

 

Not very engaging

 

Whitecraig headteacher departing after ME diagnosis

https://www.eastlothiancourier.com/news/19755650.whitecraig-head-departing-diagnosis/

 

Link : https://theferret.scot/claim-100000-have-long-covid-mostly-true/

Article continues...

 

Long Covid Scotland

I have first hand information that a person recovering from Covid and with difficulties recovering was admitted for tests on a particular problem. The test failed to find any physical problem.

The OT department discussed the case and decided that she was suffering from a functional problem resulting from a very stressful event that occurred when she contracted the illness last year. Previously very fit and active.

Major hospital Scotland Nov. 2021. A disgrace.

 

I've just read that the devolved Scottish disability benefit (Adult Disability Payment) is almost ready to be launched, and will be phased in from the end of March, replacing PIP and DLA. It looks like a great improvement, but we'll see... More info here: www.mygov.scot/adult-disability-payment-launch

If what Macpherson (MSP for social security) says in this article is true, then this will be amazing.
https://www.dailyrecord.co.uk/lifestyle/money/new-pip-benefit-rollout-confirmed-25742070

 

Post copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion. There's more discussion there.


NICE Guideline To Be Implemented In Scotland

"NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development.

What is the plan?
The government plans to create practical guidance to support the implementation of the NICE recommendations in Scotland. This will be a new process and they have brought in an external consultant, Blake Stevenson, to interview stakeholders and advise on the best way to do this for patients and professionals.

#MEAction Scotland is a stakeholder and will engage as fully as possible with the process to achieve the best outcome for people with ME. The consultation will take place over the next couple of months and we will keep the community updated."

https://www.meaction.net/2022/02/03/nice-guideline-to-be-implemented-in-scotland/

 

ME and Chronic Fatigue Syndrome
– in the Scottish Parliament on 24th February 2022.

Parliamentary debate in Scotland on ME/CFS

https://www.theyworkforyou.com/sp/?id=2022-02-24.7.0&s=Chronic+Fatigue+Syndrome

 

Fingers crossed the Edinburgh ME Self-Help Group (Edmesh) can be saved.

 

pdf

From the Healthcare Quality and Improvement Directorate
Jason Leitch, National Clinical Director
Linda Pollock, Interim Director
_____________________ ____ ___
14
June 2022
_____________________ ____ ___
Addresses
Chief Executives, NHS Boards
Medical Directors, NHS Boards
Primary Care Leads, NHS Boards
Directors of Nursing & Midw if ery,
NHS Boards
Chief Officers of Integration Authorities
Allied Health Professional Leads Network
____________

https://www.sehd.scot.nhs.uk/publications/ME_CFS.pdf