News from The Netherlands

[Jesse]

Researcher Jeroen den Dunnen wanted to do a daratumumab trial and I believe a sonlicromanol trial, but he wasn't able to due to the current constraints of only trying drugs that weren't patented. In Long-Covid ZonMw allowed it though.

Promising medicines for ME/CFS: call for drug repurposing | Jeroen den Dunnen | 60 comments

With considerable disappointment, our team has decided not to submit a proposal for a clinical trial in ME/CFS in the upcoming ZonMw call. I would like to briefly explain why. For those who may not be familiar with the background: after many years of advocacy by ME/CFS patients and patient...

www.linkedin.com

Yes, exactly. It's probably a little bit of both though. If we had more leads there might also have been more interest in off-patent drugs.

 

[rvallee]

Dutch Health Council urges government action on long Covid

Dutch Health Council urges government action on long Covid - DutchNews.nl

The Dutch Health Council has urged the ministry of health, welfare and sport to increase clarity around long Covid. Although estimates vary of how many people suffer from it, the council puts it at 400,000 people nationwide, many of whom have severe symptoms. Whether treatment for people...

www.dutchnews.nl

The Dutch Health Council has urged the ministry of health, welfare and sport to increase clarity around long Covid. Although estimates vary of how many people suffer from it, the council puts it at 400,000 people nationwide, many of whom have severe symptoms.

Whether treatment for people suffering from long Covid should be included in the regular healthcare system remains a question of national debate.
...
The new recommendations into understanding chronic post-acute infection syndromes (PAIS), of which long Covid is one, marks a U-turn from the past two years of government policy.

Broadcaster NOS reported that health minister Sophie Hermans believes the regular healthcare system should be responsible for long Covid patients. But the Dutch Health Council says “the estimated large numbers of people with long COVID and other PAIS cannot simply be absorbed into regular care.”

The ministry says it is studying the council’s advice.

 

[Grigor]

Journalist Sander Zurhake from the NOS wrote a critical piece about the report.

"Appreciation and Skepticism After the Health Council’s Advice to Take Long Covid Seriously"

Waardering en scepsis na advies Gezondheidsraad om long covid serieus te nemen

Long covid en ziekten als ME/CVS verdienen maatschappelijke erkenning als ernstige ziekte, stelt de Gezondheidsraad in een advies aan het kabinet.

nos.nl

 

[Hutan]

There's a study just out about workforce exit and work productivity loss due to post-Covid condition in the Netherlands - thread here