Psychology Today: 'Why NIH Must Not Abandon Brain Fog Research' By Jay K. Varma, M.D., a physician and epidemiologist with expertise in the prevention and control of infectious diseases. He is formerly with the Centers for Disease Control and Prevention. 'Long-COVID brain fog affects millions—we need more research, not less' 'The leading theory for COVID-19-related brain fog is neuroinflammation—an immune response in the brain triggered by viral infection.' Here are some key questions that we still do not have complete answers to: What are the precise biological mechanisms? Who is most at risk? How can we diagnose brain fog objectively? What treatments work? 'Past research on post-viral syndromes, such as chronic fatigue syndrome, has often been dismissed or underfunded until overwhelming evidence forced action. The COVID-19 pandemic has given scientists an unprecedented opportunity to study this problem. If we stop this work now, we risk missing an opportunity to help people who are suffering now and people who will suffer in the future.'
Greenfield Recorder: 'Angela Parker: A favor to ask — remember those fighting long Covid' "I’ve a question for you. Will you please think of us with long COVID? We’d love you to include our illness in your protests. Long COVID issues are social justice issues. Seven million-plus children and adult Americans need you to know that we’re still here, and we are tired of fighting alone."
3/26/25, INIM: 'Long COVID Awareness Day | Dr. Nancy Klimas' "Almost two billion dollars has been invested..in three years time there have been thousands - not hundreds - thousands of articles trying to understand the underpinnings of this illness.." "..the answers will come for you and they are coming right now and they're coming fast and furious, so, I know it's hard to be patient - when you're so terribly ill - but take the hope you need to take. Because we're going to get this thing. We're going to figure it out. We're going to find the answers for you. We're going to keep at it until we do."
Penn Live: “Lives transformed, a world reshaped: Five years on, the COVID-19 imprint lingers” ‘Currently one in four people who have had COVID suffer from..long-haul COVID…” “…like chronic fatigue syndrome, there’s no test for it. There’s no X-ray…” “Those symptoms can impact respiratory, neurological and digestive systems, and often involve fatigue and exhaustion. Those who have long-haul COVID report having problems concentrating, persistent headaches, loss of taste or smell, shortness of breath, coughing, fatigue and heart palpitations.” “If you have ongoing symptoms after having COVID, you may have this if they’re not explained by something else,” Maddox said. “It’s ill-defined, but it absolutely exists.”
Native Voice One: 'Wednesday, March 26, 2025 – Sometimes, COVID doesn’t go away' 'Long COVID affects as many as 23 million Americans' Guests include: Dr. Ivy Hurowitz & Dr. Douglas Perkins - Infectious Disease at University of New Mexico
MECFS official recognition in Alaska. https://www.alaskasnewssource.com/2...fatigue-syndrome-advances-state-legislature/#
WMTV: 'Sun Prairie teacher shares three-year battle with long COVID' '..the brain fog and fatigue linger..' '..I just realized I wasn’t getting better..' 'According to the CDC, 18 million Americans reported having long COVID...'
May 29, 2025 - Stanford Medicine: 'Unraveling Long COVID Care: Clinical Advances and Future Directions' 'Join us for an immersive half-day virtual conference, designed to provide clinicians with cutting-edge insights and strategies for effectively navigating the complex landscape of Long COVID. This event will empower you with the knowledge and skills needed to identify, diagnose, and manage the multifaceted aspects of Long COVID in clinical practice' 'Please note, the intended audience for this webinar is clinicians and health professionals only, not patients and non-health professionals'
3/26/25, UCLA Health: 'Research continues on long COVID treatment' 'When it comes to research into helping people living with long COVID..we can report that it continues to be robust..more than 450 clinical trials are either in progress or are actively recruiting'
Washington Post: ‘Something was wrong with my brain’: How covid leaves its mark on cognition' 'Five years after the pandemic began, the neurocognitive effects of long covid are numerous and troubling...'
St. Louis American: 'Long COVID continues its haunting impact' “It wasn’t just being tired; it was like my body physically couldn’t keep up...she said she experienced brain fog and was in a constant daze," Goldsby said “Trying to get answers was frustrating"
https://twitter.com/user/status/1905706858813493315 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision. Exclusive in @thesicktimes https://thesicktimes.org/2025/03/28/update-recover-long-covid-pathobiology-grants-restored/
Arizona Daily Sun: 'Pandemic's effects still felt by long COVID patients in Flagstaff' Jenn Guyer has been living with long COVID for over four years...her heart rate rapidly increases with small amounts of exertion...' "...if I do too much, I’m wiped out, and I could be wiped out for a day; I could be wiped out for a whole week.” 'The immune response to an infection is one possible explanation for long COVID, Engelthaler said. He explained that the virus adapted to humans at the same time as human immune systems adapted to respond to COVID.' According to Engelthaler, other diseases have "long-term post-acute" symptoms associated with them. These are chronic symptoms that follow an initial illness without a clear cause. Viral infections can sometimes lead to chronic fatigue syndrome, which wasn't well understood before the pandemic. Long COVID "is really opening our understanding [of] what are the long-term effects of getting infected with a virus, especially one that the body’s never seen before, like COVID," he said.
3/26/25, Dr. Patrick Soon-Shiong in interview: "So the question is, can we prove, is this what I call long COVID, virus persisting? And the group at University of California San Francisco has now definitively proven that and published that in papers like Nature. Can we also prove that once you have that persistence of that virus, does that COVID virus suppress the natural killer cell? Does a natural killer cell actually not only go to sleep - it becomes what-you-call-energic? That's now been published. The natural killer cell has gone to sleep." Soon-Shiong: "There's 15 million Americans with long COVID..."
NEWS 27 March 2025 75% of US scientists who answered Nature poll consider leaving "Cuts to research funding in the US have forced many scientists to rethink their careers" "More than 1,600 readers answered our poll; many said they were looking for jobs in Europe and Canada"
Forbes: 'RFK Jr. Expected To Lay Off Entire Office Of Infectious Disease And HIV/AIDS Policy' 'The U.S. is still reeling from the COVID-19 pandemic with more and more long COVID cases emerging' '...the U.S. still has no clear long-term strategies on how to deal with COVID-19 and the growing burden of long COVID. Since the COVID pandemic emerged in 2020, there have been repeated attempts by politicians from both major political parties to sweep COVID under the rug rather than deal with it head on as needed. But you can’t sweep under the rug the fact that people are still getting COVID-19, getting COVID-19 brings the risk of long COVID, and there still aren’t enough adequate treatments for this chronic ongoing condition."
Not that the US has an ongoing HIV issue - for example as compared to the UK: United Kingdom Prevalence = 0.17% Total cases = 116,000 United States Prevalence =0.42% Total cases = 1,427,15 source: https://en.wikipedia.org/wiki/HIV_adult_prevalence_rate
Gothamist: ‘Shrinking my world really small’: How New Yorkers are coping with long COVID' 'One of the most common reported symptoms is chronic, debilitating fatigue. That’s often paired with a punishing condition known as post-exertional malaise..'
Article in Salon today: "Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS" https://www.salon.com/2025/04/01/ad...earch-abandons-long-and-mecfs-patients-again/
