News from the USA, United States of America

4/7/25, American Medical Association: 'Long COVID 2025: Symptoms, diagnosis, post-COVID treatments and the latest long COVID research'

'Akiko Iwasaki, PhD, Sterling Professor of Immunobiology at Yale University, discusses new long COVID research...'

 

Nature: 'Long COVID activists fought Trump team’s research cuts and won ― for now'

'Success gives hope to scientists and advocates who managed to get millions of dollars in grants restored.'

“The long COVID patient community is reeling and flabbergasted by what they’re seeing,,” says Emily Taylor, president of the Solve ME/CFS Initiative and based in Glendale, California. “We’ve been telling congresspeople, ‘Stop cutting, first thing. Stop hurting us. Stop the pain.’”

Free archive link here: https://archive.ph/kdOc9

 

National Geographic: 'What exactly is brain fog? Here’s what scientists are finding out.'

'Scientists have long struggled to define brain fog—let alone pinpoint a cause for it. But research is starting to reveal multiple potential causes from inflammation to a leaky blood-brain barrier.

After a COVID-19 infection, many patients found themselves in a fog. Their attention wandered, their memory faltered. They felt sluggish, had trouble thinking straight, and struggled with basic chores.'

'Patients report brain fog as a consequence of chronic conditions including fibromyalgia, myalgic encephalomyelitis/chronic fatigue syndrome, and lupus. '

'“One of the biggest hypotheses for what underlies brain fog in all of these different conditions is neuroinflammation,” Becker says.

'Nath and his team are also studying the effects of intravenous immunoglobulin, an antibody that is used to treat immunological disorders like lupus, on long COVID. The theory is that it will suppress the immune system’s excessive inflammatory response, which would in turn keep the body from damaging healthy cells and alleviate brain fog. Next, they also want to try using checkpoint inhibitors, a type of immunotherapy typically used to help the body's immune system fight cancer, in cases of long COVID, too.'

 

April 10, 2025 - Yale School of Public Health: 'The State of Long COVID: A Panel Discussion with Researchers, Disability Advocates, and Students'

Panelists - including Yale Medicine's Dr. Akiko Iwasaki, Mt. Sinai's Dr. David Putrino, and more - will discuss Long COVID's far-reaching effects, emerging scientific findings about its causes, and hopeful developments in prevention and treatment, while advocates and students will share their perspectives on navigating viral threats.

The event can be attended in-person at the Winslow Auditorium, or virtually on Zoom.

 

KPBS: 'Patients struggle with long COVID years after pandemic began'

'San Diegans like Jason Rissman are still fighting to recover — not just physically, but in a health care system that often fails to support them'

 

Boosting from #NotJustFatigue.

https://twitter.com/user/status/1909671972327276879


Text: "Just received word that Dr. W. Ian Lipkin is doing a live podcast with Howard Zucker TOMORROW Wednesday April 9 at 1 pm ET. It’s an opportunity for members of the community to ask questions and highlight concerns. LINK: https://letshang.live/event/d8f2e132-docology-world-health-alert "

 

April 2025 Issue, Access Press: 'ME/CFS, ties to Long COVID are the focus of ongoing research studies'

'Understanding the effects of Long COVID may also mean understanding what is called ME/CFS.'

'Another term used in the MDH presentation is “crash.” A crash is a colloquial term for post-exertion malaise (PEM). It happens when people with ME/CFS use up more energy than they have.'

'Access Press provides coverage of COVID issues with support from the Metropolitan Center for Independent Living (MCIL). This activity is made possible by a grant from the Long COVID Program of the Minnesota Department of Health.'

 

Is that true? I thought there was more to a "crash" than PEM.

 

Medical dictionary meaning of the term 'crash':

1. A colloquial term for a sudden change for the worse in a patient's health. 2. A colloquial term for acute drug withdrawal.

This does not describe delayed PEM. I think we need to stay away from the term crash.

 

Common Dreams: 'The Lessons of Covid-19 and Its Long Haul: We Need Community Care'

'An estimated 7.5% of adults in the United States suffer from Long Covid..from brain fog..to bedridden fatigue...I know this because it happened to me.'

'Aches and pains, post-exertional malaise, and a weakened immune system circumscribe my daily activities.'

'To be sure, we still need to push institutions at the local and federal levels to make available personal protective equipment and resources for frontline workers, better access to healthcare, more research on Long Covid and other underfunded chronic conditions such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).'

 

RFK Jr. says HHS will determine the cause of autism by September

RFK Jr. says HHS will determine the cause of autism by September

 

I read that Andrew Wakefield (ex doctor) did his first feature thriller film in Hollywood in 2024 called Protocol-7, which claims the mumps jab causes serious long-term health issues.