NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

I have no idea what the current presenter is talking about

 

Neither have I but that's largely coz my player went on pause when the break started, and I've been doing stuff waiting for the sound to resume before I switched back........

I had no idea it had restarted until your post.

 

For those on Apple products this might be a solution.
https://twitter.com/user/status/1113825564928950274

 

I don't either.

 

The next presentation is Jonas Bergquist, should start very soon.

 

My main take-away from Naviaux this time was that using the means of studying and/or healing acute illness does NOT work on chronic illness. That might be a philosophical angle, but I do think it's important.

 

Thanks for your reply, so its not just my ME cognitive impairment blowing my brains out here

 

The current speaker is emphasizing the need for standardized data points and data sharing. A lot is over my head, but what I understand is good and important. I liked when he told NIH they need to evaluate grant applications in different ways than how they've "always done it."

 

I have had couple freezes today but nt hte downtime others are getting.
Not sure why, i am using Chrome on Windows
I normally use Firefox but have too many open tabs on it right now

 

The current presenter, taking questions at the moment, and topic from the agenda is - “Informatics tools for investigating metabolic dysregulation in ME/CFS" Oliver Fiehn (UC Davis)

 

Authorize Flash for this? Nah.

This thing is wildly inconsistent. Keeps stopping, so far three browsers including Chrome. Several times it stopped when I was closing a tab in a different browser. At the moment runs on my phone using Chrome but it did stop before on that. I wonder how often this happens at videocasts of research conferences involving diseases where a large number of substantially disabled and impaired patients are reliant on their tech to try to watch along.

 

Jonas Bergquist wrapping up his presentation. His final slide

 

Very interesting talk by Oliver Fiehn. He mentioned many of the issues that we will have to overcome when it comes to data analysis and for setting up the necessary mechanisms to get good quality data.

I am also very excited to hear several mentions on mining published research and harnessing it for extracting knowledge ! :

 

Just died for the first time for more then a few secs on my end, the number of viewers crashed and its says

Cannot load m3u8 crossdomain access denied

 

Two slides

 

You're not missing much, all that's happening is they've moved down a coal mine and turned all the microphones off.

I've you're into black silence it's wonderful, and much less environmentally friendly than turning off my monitor.

ETA - I now have a message, from the internet, which says "Error loading player: No playable sources found"

Which is nice.

 

Break for lunch for an hour, then back with

Immunology of ME/CFS
Nancy Klimas (NOVA SE) –moderator
1-1:30 PM "Cytokine networks and HLA genetic susceptibility associated with ME/CFS and disease severity" Jose Montoya (StanfordUniversity)
1:30-2 PM “Potentially important T cell activity in CFS/ME” Mark Davis (Stanford University)
2-2:30 PM “Disturbance of the immune system during ME/CFS” Derya Unutmaz (Jackson Labs)
2:30-3PM “Cellular Metabolism of Immune Cells” Maureen Hanson (Cornell University)​

 

The livestream difficulties are ridiculous and are making it tough to follow things.
For a patient population plagued with cognitive issues it is additionally exhausting to try to piece things together with all of these gaps in the streaming.

I hope that in addition to posting the videos, transcripts will also be made available.