NIH Request For Information: Soliciting Input on How Best to Advance ME/CFS research

[Alvin]

I need another reference, how long does it take people to be diagnosed on average?
I found this link but its over 10 years old
https://www.prohealth.com/library/a...nts-how-many-years-and-how-many-doctors-25211

 

[Hutan]

Depends on whether you are including the reportedly large number of people who are never diagnosed. If so, there's a lot of infinities to include in the averaging.

 

[Alvin]

I basically need the best we got

 

[Alvin]

I need another reference, how long does it take people to be diagnosed on average?
I found this link but its over 10 years old
https://www.prohealth.com/library/a...nts-how-many-years-and-how-many-doctors-25211

I just went with this one so no need to look anymore

 

[Andy]

Solve's submission
https://solvecfs.org/wp-content/uploads/2019/05/Solve-ME-Response-to-NIH-NANDS-RFI.pdf

 

[Alvin]

Solve's submission
https://solvecfs.org/wp-content/uploads/2019/05/Solve-ME-Response-to-NIH-NANDS-RFI.pdf

Interesting, they went in a completely different direction then i did
But their document only covers the first two categories.

 

[Alvin]

https://www.frontiersin.org/articles/10.3389/fped.2019.00131/full friedman

Damn
I wish i had this yesterday

 

[Alvin]

The form is still available to submit ideas, though no idea if it will actually send if you hit submit.

 

[WillowJ]

Do we know if there's any follow up or result from this?

 

[Alvin]

Do we know if there's any follow up or result from this?

None on my end.
I don't expect any, iirc it doesn't request contact information hence they can't reply.