Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

Discussion in 'Long Covid research' started by Sly Saint, Feb 8, 2021.

  1. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Yes, Terence Stephenson is both chair of the HRA and the PI of the 'CloCk' study (co-applicant Esther Crawley).
    See:
    https://www.ucl.ac.uk/news/2021/feb/ucl-researchers-lead-ps11m-projects-investigate-long-covid
     
    Last edited: Feb 18, 2021
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  2. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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  3. alktipping

    alktipping Senior Member (Voting Rights)

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    more resources wasted it must be nice to be paid for repeating the same endless circle .
     
  4. dave30th

    dave30th Senior Member (Voting Rights)

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    Gee, that would seem to insulate her from any more scrutiny from the HRA.
     
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I wonder if Terence Stephenson is aware of/has watched this:

    https://www.youtube.com/watch?v=jeujHnwsYPs




    (where Esther Crawley displays the mock up threatening letter formerly used by the Times and says 'I don't have balls')
    talks about the SMILE trial, MAGENTA and FITNET

    so thats LP, GET and more GET............has he read the draft new NICE guidelines?
     
  7. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    He was also chair of the GMC from September 2014 until January 2019 (see https://en.m.wikipedia.org/wiki/Terence_Stephenson and https://www.gmc-uk.org/news/news-archive/new-chair-of-the-general-medical-council).

    He would also have been member of the Council before he became chair, so he would presumably have played a key role in adjudicating on complaints made about Dr Crawley and other members of the BPS brigade.

    When Dr Myhill made her complaint about the PACE authors she asked people to write to Sir Terence as chair of the GMC in support of her complaint.

    [edit: corrected dates]
     
    Last edited: Feb 27, 2021
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  8. daftasabrush

    daftasabrush Senior Member (Voting Rights)

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    As in chair of the HRA during the time it investigated Crawley's ethics breaches?

    This Terrence Stephenson...
    https://www.virology.ws/2019/09/04/trial-by-error-more-on-cochranes-new-risk-of-bias-tool/

    whose head of risk dismissed Crawley's eleven ethics breaches involving children... https://www.virology.ws/wp-content/...o-concern-with-independent-panel-report-1.pdf

    Also the Terence Stephenson that Dr Sarah Myhill sent her GMC complaint about the PACE authors to in 2018, supported by a petition of over 10,000 https://www.change.org/p/the-genera...s-complaint-to-the-gmc-about-the-pace-authors

    Also RCPCH trustee, and president from 2009 to 2012 https://www.rcpch.ac.uk/about-us/our-team/professor-sir-terence-stephenson

    "Among many other achievements, the ‘Stephenson Review’ of the UK Medicines Healthcare Regulatory Agency (2014) recommended and achieved substantial changes to improve the safety and function of the organisation. Whilst at the Academy of Medical Royal Colleges, Terence continued to work on behalf of children, being on the Board of NSPCC, the first Independent Panel Inquiry into Child Sexual Abuse (at the request of the Home Secretary) and Chair of the Scientific Committee of European Paediatric Association Europediatrics 2015 meeting." http://eprints.hud.ac.uk/id/eprint/32250/1/RCPCH 2016 Conference Programme_IF_A4_AW_ONLINE.pdf

    The child abuse panel did not go well for the abuse survivors... https://www.bbc.co.uk/news/uk-30572446

    I don't see any direct involvement in the RCPCH Evidence Based Guideline for the Management of CFS/ME (Chronic Fatigue Syndrome/ Myalgic Encephalopathy) in Children and Young People
    December 2004
    .

    Seems like Terence Stephenson if an establishment figure keen to continue to follow the government line... so much so I'm wondering why he didn't get knighted yet.

    (correction - he did get knighted https://www.gmc-uk.org/news/news-archive/professor-terence-stephenson-awarded-a-knighthood)

    He's also contributed to the Fabricated Induced Illness by carers document - which is a form of abuse parents of children with severe ME/CFS have been accused of either if they refuse GET or if the child didn't get better or doesn't seem to match the NHS misinformation about it... I don't know about this document exactly but we do know of children sectioned in locked psych wards or forcibly removed and fostered in order to force a treatment that parents and child have declined... I've forgotten the name and year of the documentary about that. https://www.rcpch.ac.uk/sites/defau...A_Practical_Guide_for_Paediatricians_2009.pdf

    He's had 2 previous GMC complaints about him https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5916065/

    Back in 2011 he wrote about Swine Flu without mentioning ME and was against using surgical masks...

    And guess who was a reviewer for Archives for Disease in Childhood last year... http://adc.bmj.com/pages/thank-you-to-our-reviewers/

    Unsurprisingly busy at the Science Media Centre and doing TV

    @dave30th
     
  9. Forbin

    Forbin Senior Member (Voting Rights)

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    After Anthony Burgess' novel, I would have advised against naming any behavioral study using either the word "clock" or the word "orange."
     
    Last edited: Feb 28, 2021
  10. Amw66

    Amw66 Senior Member (Voting Rights)

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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  12. Andy

    Andy Committee Member

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  13. Esther12

    Esther12 Senior Member (Voting Rights)

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    Just saw Chalder was also a part of this:

    https://www.jobs.ac.uk/job/CGY631/p...-in-children-and-young-people-with-long-covid
     
  14. dave30th

    dave30th Senior Member (Voting Rights)

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    What student wouldn't benefit from such mentorship?
     
  15. Hutan

    Hutan Moderator Staff Member

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    I might have missed it of course, but where is the patient involvement in the supervisory team? I mean, of course the joy of doing research on children is that it can be assumed that they don't know enough to warrant being involved in any way other than being data points, but where is at least a token wave towards the involvement of a patient advocacy group?

    Trudie Chalder and Esther Crawley are very much known quantities and it doesn't look like Isobel Heyman will be approaching this study with an open mind. Here
    https://www.acamh.org/research-digest/online-cbt-is-ineffective-for-treating-adolescent-anxiety/
    she commented on a study that had found that internet delivered CBT didn't help adolescent anxiety:
    Tamsin Ford (CBE) has popped up a bit already, arguing for money for research into the mental health impacts of Covid-19.

    Just to repeat:
    I wonder what we and Long Covid advocates can do to try to prevent this study being an unmitigated disaster for young people with Long Covid?
     
  16. Tilly

    Tilly Senior Member (Voting Rights)

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    He was the president of the RCPCH part of CBT studies and brought in Fabricating and Inducing Illness
     
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  17. rvallee

    rvallee Senior Member (Voting Rights)

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    The protocol has been published. Notable that Crawley's name isn't listed (and Chalder is also involved, I think?, also not listed). Technically Crawley is the foremost "expert" on this, this is the kind of moment in someone's career where everything comes into focus, where expertise is trusted into the spotlight. Maybe they are losing some of their influence?


    Long COVID and the mental and physical health of children and young people: national matched cohort study protocol (the CLoCk study)
    https://pubmed.ncbi.nlm.nih.gov/34446502/
     
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "
    Collaborators
     
  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    the video has been taken down
     
  20. rvallee

    rvallee Senior Member (Voting Rights)

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