Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

eidt: I didn't notice that the name was spelt differently, but it still looks like Terence Stevenson could be the new chair of the HRA?

https://en.wikipedia.org/wiki/Terence_Stephenson

and this one was a paediatric doctor, and one of his top co-authors on researchgate is Rona Moss-Morris: https://www.researchgate.net/profile/Terence_Stephenson

Yes, Terence Stephenson is both chair of the HRA and the PI of the 'CloCk' study (co-applicant Esther Crawley).
See:
https://www.ucl.ac.uk/news/2021/feb/ucl-researchers-lead-ps11m-projects-investigate-long-covid
 
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I wonder if Terence Stephenson is aware of/has watched this:


(where Esther Crawley displays the mock up threatening letter formerly used by the Times and says 'I don't have balls')
talks about the SMILE trial, MAGENTA and FITNET

so thats LP, GET and more GET............has he read the draft new NICE guidelines?
 
Yes, Terence Stephenson is both chair of the HRA and the PI of the 'CloCk' study (co-applicant Esther Crawley).
Gee, that would seem to insulate her from any more scrutiny from the HRA.
He was also chair of the GMC from September 2014 until January 2019 (see https://en.m.wikipedia.org/wiki/Terence_Stephenson and https://www.gmc-uk.org/news/news-archive/new-chair-of-the-general-medical-council).

He would also have been member of the Council before he became chair, so he would presumably have played a key role in adjudicating on complaints made about Dr Crawley and other members of the BPS brigade.

When Dr Myhill made her complaint about the PACE authors she asked people to write to Sir Terence as chair of the GMC in support of her complaint.

[edit: corrected dates]
 
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As in chair of the HRA during the time it investigated Crawley's ethics breaches?

This Terrence Stephenson...
https://www.virology.ws/2019/09/04/trial-by-error-more-on-cochranes-new-risk-of-bias-tool/

whose head of risk dismissed Crawley's eleven ethics breaches involving children... https://www.virology.ws/wp-content/...o-concern-with-independent-panel-report-1.pdf

Also the Terence Stephenson that Dr Sarah Myhill sent her GMC complaint about the PACE authors to in 2018, supported by a petition of over 10,000 https://www.change.org/p/the-genera...s-complaint-to-the-gmc-about-the-pace-authors

Also RCPCH trustee, and president from 2009 to 2012 https://www.rcpch.ac.uk/about-us/our-team/professor-sir-terence-stephenson

"Among many other achievements, the ‘Stephenson Review’ of the UK Medicines Healthcare Regulatory Agency (2014) recommended and achieved substantial changes to improve the safety and function of the organisation. Whilst at the Academy of Medical Royal Colleges, Terence continued to work on behalf of children, being on the Board of NSPCC, the first Independent Panel Inquiry into Child Sexual Abuse (at the request of the Home Secretary) and Chair of the Scientific Committee of European Paediatric Association Europediatrics 2015 meeting." http://eprints.hud.ac.uk/id/eprint/32250/1/RCPCH 2016 Conference Programme_IF_A4_AW_ONLINE.pdf

The child abuse panel did not go well for the abuse survivors... https://www.bbc.co.uk/news/uk-30572446

I don't see any direct involvement in the RCPCH Evidence Based Guideline for the Management of CFS/ME (Chronic Fatigue Syndrome/ Myalgic Encephalopathy) in Children and Young People
December 2004
.

Seems like Terence Stephenson if an establishment figure keen to continue to follow the government line... so much so I'm wondering why he didn't get knighted yet.

(correction - he did get knighted https://www.gmc-uk.org/news/news-archive/professor-terence-stephenson-awarded-a-knighthood)

He's also contributed to the Fabricated Induced Illness by carers document - which is a form of abuse parents of children with severe ME/CFS have been accused of either if they refuse GET or if the child didn't get better or doesn't seem to match the NHS misinformation about it... I don't know about this document exactly but we do know of children sectioned in locked psych wards or forcibly removed and fostered in order to force a treatment that parents and child have declined... I've forgotten the name and year of the documentary about that. https://www.rcpch.ac.uk/sites/defau...A_Practical_Guide_for_Paediatricians_2009.pdf

He's had 2 previous GMC complaints about him https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5916065/

Back in 2011 he wrote about Swine Flu without mentioning ME and was against using surgical masks...

And guess who was a reviewer for Archives for Disease in Childhood last year... http://adc.bmj.com/pages/thank-you-to-our-reviewers/

Unsurprisingly busy at the Science Media Centre and doing TV

@dave30th
 
Just saw Chalder was also a part of this:

A 3-year PhD Studentship funded by the Beryl Alexander Charity and Great Ormond Street Hospital Children’s Charity is available in the Population, Policy and Practice Research and Teaching Department, Great Ormond Street UCL Institute of Child Health. The studentship will commence in October 2021 under the supervision of Professor Roz Shafran, Professor Sir Terence Stephenson and a wider supervisory team of Professors Isobel Heyman, Tamsin Ford, Trudie Chalder and Esther Crawley.

The CLoCk study will recruit 6000 children and young people identified from public health records to help us understand the mental and physical health of children who have tested positive for COVID-19. We will also have a group of comparable children and young people who have tested negative as this will help us understand the role of the physical health component (infection) as well as the other factors that could influence Long Covid such as anxiety due to lockdown. We will be following these children over a 2 year period and they will be answering questions on their physical and mental health so we can track the trajectory of symptoms over time. This large-scale national data-based project (CLoCk) would be enhanced by an understanding of the experience of long COVID from the young person’s perspective and greater understanding of the role of mental health vulnerabilities and the role of parental mental health. We also want to conduct a preliminary evaluation of a Stepped Care approach to intervention, building on prior work funded by the Beryl Alexander Charity in the form of the ‘Lucy’ project. A PhD student commencing in September 2021 would be in an ideal position to undertake more intensive research to investigate the relationship between mental health and recovery from post-viral infection with a view towards evaluating effective interventions. The PhD student will also obtain generic skills by attending relevant courses run by UCL.

The student will receive a starting stipend of up to £26,000 per annum (including London weighting) depending on clinical qualification and skills, as well as the cost of tuition fees based on UK fee or international fee status.

Personal Specification

Applicants should have, or expect to receive an upper second-class Bachelor’s degree and a Master’s degree (or equivalent work experience) in a relevant discipline or an overseas qualification of an equivalent standard.

Eligibilty

This studentship covers the cost of tuition fees based on the UK (Home) rate or International Fees.

NB: You will be asked about your likely fee status at the interview so we would advise you to contact the UCL Graduate Admissions Office for advice should you be unsure whether or not you meet the eligibility criteria for Home fee status. Further information on Brexit and the definitions for fee status assessment can be found on the UCL website and also the UKCISA website (Higher Education: Definitions for fee status assessment).

Application

To apply, please send a current CV including the contact details of two professional referees as well as a cover letter to leonard.jones@ucl.ac.uk. Enquiries regarding the post can be made to r.shafran@ucl.ac.uk.

Deadline for receipt of applications: Friday 2nd July 2021

Interview date: Friday 16th July 2021

https://www.jobs.ac.uk/job/CGY631/p...-in-children-and-young-people-with-long-covid
 
A 3-year PhD Studentship funded by the Beryl Alexander Charity and Great Ormond Street Hospital Children’s Charity is available in the Population, Policy and Practice Research and Teaching Department, Great Ormond Street UCL Institute of Child Health. The studentship will commence in October 2021 under the supervision of Professor Roz Shafran, Professor Sir Terence Stephenson and a wider supervisory team of Professors Isobel Heyman, Tamsin Ford, Trudie Chalder and Esther Crawley.
I might have missed it of course, but where is the patient involvement in the supervisory team? I mean, of course the joy of doing research on children is that it can be assumed that they don't know enough to warrant being involved in any way other than being data points, but where is at least a token wave towards the involvement of a patient advocacy group?

Trudie Chalder and Esther Crawley are very much known quantities and it doesn't look like Isobel Heyman will be approaching this study with an open mind. Here
https://www.acamh.org/research-digest/online-cbt-is-ineffective-for-treating-adolescent-anxiety/
she commented on a study that had found that internet delivered CBT didn't help adolescent anxiety:
The current Covid-19 situation has enhanced the need to carry out psychological therapies remotely with families, including pointers to self-help. Self-help and guided-self-help for children and adolescents has been the subject of several research studies. The Bridge wants to remind readers that an article in the last edition ‘Online CBT is ineffective for treating adolescent anxiety’ was a summary of a single important article, and the title was not intended to represent the overall status of the efficacy of online anxiety treatments in youth. There are well evaluated and effective online and other remote interventions for a range of conditions – including anxiety – in children and young people.
Tamsin Ford (CBE) has popped up a bit already, arguing for money for research into the mental health impacts of Covid-19.

Just to repeat:
Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study). £1.35 million
I wonder what we and Long Covid advocates can do to try to prevent this study being an unmitigated disaster for young people with Long Covid?
 
I might have missed it of course, but where is the patient involvement in the supervisory team? I mean, of course the joy of doing research on children is that it can be assumed that they don't know enough to warrant being involved in any way other than being data points, but where is at least a token wave towards the involvement of a patient advocacy group?

Trudie Chalder and Esther Crawley are very much known quantities and it doesn't look like Isobel Heyman will be approaching this study with an open mind. Here
https://www.acamh.org/research-digest/online-cbt-is-ineffective-for-treating-adolescent-anxiety/
she commented on a study that had found that internet delivered CBT didn't help adolescent anxiety:

Tamsin Ford (CBE) has popped up a bit already, arguing for money for research into the mental health impacts of Covid-19.

Just to repeat:

I wonder what we and Long Covid advocates can do to try to prevent this study being an unmitigated disaster for young people with Long Covid?

He was the president of the RCPCH part of CBT studies and brought in Fabricating and Inducing Illness
 
The protocol has been published. Notable that Crawley's name isn't listed (and Chalder is also involved, I think?, also not listed). Technically Crawley is the foremost "expert" on this, this is the kind of moment in someone's career where everything comes into focus, where expertise is trusted into the spotlight. Maybe they are losing some of their influence?


Long COVID and the mental and physical health of children and young people: national matched cohort study protocol (the CLoCk study)
https://pubmed.ncbi.nlm.nih.gov/34446502/
 
The protocol has been published. Notable that Crawley's name isn't listed (and Chalder is also involved, I think?, also not listed). Technically Crawley is the foremost "expert" on this, this is the kind of moment in someone's career where everything comes into focus, where expertise is trusted into the spotlight. Maybe they are losing some of their influence?


Long COVID and the mental and physical health of children and young people: national matched cohort study protocol (the CLoCk study)
https://pubmed.ncbi.nlm.nih.gov/34446502/
"
Collaborators
 
I wonder if Terence Stephenson is aware of/has watched this:


(where Esther Crawley displays the mock up threatening letter formerly used by the Times and says 'I don't have balls')
talks about the SMILE trial, MAGENTA and FITNET

so thats LP, GET and more GET............has he read the draft new NICE guidelines?

the video has been taken down
 
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