Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018 Main Report http://www.trevwilliams.co.uk/OMEGA Report Children's Experiences of ME.pdf Executive Summary http://www.trevwilliams.co.uk/Executive Summary OMEGA Report Children's Experiences of ME.pdf
Valuable information here with comments in line with our experience of treatment of young people with ME in Australia and NZ. I hope that NICE decision-makers will read it.
I' ve only read the executive summary which seems to confirm lived experience throughout UK. Important for all our charities to be fully aware of the actuality of life, and the particular vulnerabilities of children and families. @Russell Fleming @Action for M.E.
"Children and families need more support over chronic fatigue, says ME charity AN OXFORD mother has backed a charity’s calls for more support for children in the county suffering from the chronic fatigue condition ME. Iona Fabian from Aston has said doctors, schools and social services must be more informed over the condition which has affected her 20-year-old daughter, Zoe, for the last eight years. In a recent report, Oxfordshire ME Group for Action (OMEGA) found that medical professionals were often poorly trained in recognising the condition and as a result were unable to offer appropriate support and treatment." http://www.oxfordmail.co.uk/news/16...eed-more-support-over-me-says-oxford-charity/
