Pathophysiology of sleep disturbances/unrefreshing sleep in pwME?

[Hutan]

We are moving off-topic posts related to cognition to this thread:
Brain fog, cognitive dysfunction

 

[rvallee]

Someone with ME/CFS may ill-advisedly get behind the wheel underestimating how tired they are, but I don’t know of a single story of someone with ME/CFS jumping in the car completely unaware that there might be some medical problem which makes this a potentially bad idea (unless they also had other comorbidities where this is common). My relatives with dementia, on the other hand, will insistently claim that they have absolutely no problems operating heavy machinery and that they just need to get to work for the job they retired from 20 years ago.

Absurdly enough, reading this soon after looking at the latest CBT app turd from Stone and Carson, the ideologues call this having poor metacognition.

They actually point to the fact that we are aware of having cognitive problems not as evidence that we have both cognitive impairment and awareness of it, but rather that we have some fear-based distress about potentially having such impairment, when in their opinion we have perfectly normal cognitive performance. Basically, we simply underestimate what is a normal cognitive function, with bits of having unrealistic expectations, based on who knows what nonsense.

So there's no winning. It is definitely different from dementia, we are as fully aware of our cognitive problems as we can be, but where there is usually a fondness to throw vague labels, such as alexithymia, or whatever is fashionable these days, when we explain that we have difficulties explaining those deficits, they love to throw the opposite labels when we explain that we are aware of those deficits, simply because they don't believe in them. Or, actually, that they have different beliefs about them.

In a person with normal reasoning skills, not tainted with odd biases, this argument is actually very useful, and likely an important clue. But it will always be distorted to push what is clearly the generic concept that has lately become the main fashion: we are simply afraid. Afraid of standing, of moving, of experiencing things, of thinking, of talking, of whatever.

 

[Utsikt]

Absurdly enough, reading this soon after looking at the latest CBT app turd from Stone and Carson, the ideologues call this having poor metacognition.

They actually point to the fact that we are aware of having cognitive problems not as evidence that we have both cognitive impairment and awareness of it, but rather that we have some fear-based distress about potentially having such impairment, when in their opinion we have perfectly normal cognitive performance. Basically, we simply underestimate what is a normal cognitive function, with bits of having unrealistic expectations, based on who knows what nonsense.

So there's no winning. It is definitely different from dementia, we are as fully aware of our cognitive problems as we can be, but where there is usually a fondness to throw vague labels, such as alexithymia, or whatever is fashionable these days, when we explain that we have difficulties explaining those deficits, they love to throw the opposite labels when we explain that we are aware of those deficits, simply because they don't believe in them. Or, actually, that they have different beliefs about them.

In a person with normal reasoning skills, not tainted with odd biases, this argument is actually very useful, and likely an important clue. But it will always be distorted to push what is clearly the generic concept that has lately become the main fashion: we are simply afraid. Afraid of standing, of moving, of experiencing things, of thinking, of talking, of whatever.

That’s what my neuropsych said after my evaluation. Found out later that he considers LC to be psychosomatic. Wonder why he’s the only neuropsych at my health insurance..