Patient perspective series: My experience of chronic fatigue syndrome – People and pain

Indigophoton

Indigophoton

Senior Member (Voting Rights)
A short piece on the Pharmacy in Practice website, aimed at health professionals.
I’M sure it isn’t just me but I felt like I told a lot of lies when it came to my chronic fatigue and pain. This probably got me down more in a lot of ways that the actual symptoms themselves.

So much of my energy was devoted to pretending that I was ok because I don’t want to burden others. Conversely, when I did confide in someone I wanted them to fully comprehend my situation and, to my shame, I got annoyed and frustrated if I thought they didn’t understand.

Sad as it is to say fatigue and pain are a big part of my life. They dominate what I do and what I think for the majority of the time. I guess I was stuck between wanting to offload this nightmare onto others and equally not wanting them to suffer as well. I felt like I was walking a tightrope made of razor-wire.
Click to expand...

https://pharmacyinpractice.scot/201...-of-chronic-fatigue-syndrome-people-and-pain/

There are a few other articles on ME/CFS too in the patient perspective series, eg

https://pharmacyinpractice.scot/201...rience-of-chronic-fatigue-syndrome-diagnosis/

https://pharmacyinpractice.scot/201...osed-and-often-misunderstood-chronic-disease/
 
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