The Telegraph Perrin article comments are full of uninformed opinionators and gaslighters, and Perrin fans. The Telegraph has disgracefully pinned this Comment, which urges research on the Perrin technique, and disparages medical research for medications for ME. The whole article appears to have a damaging agenda. Pinned Telegraph Comment: 'I have CFS and have found head massage extremely effective on the symptoms. As well as lymphatic issues, this article joins the dots. It is so well written and raises valid and important points. Let’s hope there is more where this comes from, hopefully reflecting an increase in research within the area, that could have far reaching positive results for many thousands of people. Certainly, management and causation approaches far outweigh the costs and ineffectiveness of ignoring it or trying to create a pharmaceutical drug.' You can subscribe to the Telegraph for a few months for a couple of quid a month, then you can comment on articles. When your low cost subscription runs out they just offer you another low cost one. Cant remember if it's £3 or £1 a month for 3 months. You can also subscribe to the Times for £1 a month for 6 months, via google, and so can comment in the Times as well. .
Ughhh my sister has sent me a link to this article. She's not science literate like we are on here - she's into loads of weird health shit, didn't take the covid vaccine... She's not gonna understand if I attempt to explain why I'm not going to do the Perrin Technique, it's just gonna look to her like I'm not taking up an opportunity to get better. Weirdly, I also feel slightly positive about her sending me this, because the article treats ME/CFS as a biomedical condition (even if it's got it all wrong) and not something that is the patient's fault or could be changed if the patient thought differently. And I was worried that my sister thought those things about me so at least this shows that she doesn't? (Or that she may have previously thought it but the article convinced her that it's a biomedical illness... if so I don't want to disabuse her of that notion lol)
Ok, talked to my parents about it, I'm going to just thank her for thinking of me and say I'll look into whether it's right for me, and then next time my dad sees her, which will be in a few weeks, he'll make sure she knows that I'm not not trying to get better. And according to my parents she is less into the weird health shit nowadays (at least, she uses sunscreen now rather than... I can't remember what weird thing she was doing before to supposedly prevent cancer, but anyways she wears the sunscreen now) and they think she has always believed my illness is biomedical. Just... fuck the Telegraph for causing me (and I'm sure many other patients) unnecessary stress over this!
The Telegraph has put ME firmly back in the Lifestyle pages. Perrin has a book to sell. That's obviously more important than the Telegraph reporting on the Coroner's Prevention of Future Deaths report. More important than the national scandal reported on by George Monbiot, more important than saving ME lives. We don't stand a chance when ambitious people with books to sell want their publicity in the nationals.
I was sent a copy of this article by a friend too. The Daily Telegraph has long since abandoned any concern for truth. I wonder what James Le Fanu makes of this promotion of quackery.
Other articles say that Betty Ross has Fibromyalgia too, and that Perrin helped with that. This physiotherapy site: https://www.kerrieaustinphysio.com/chronic-fatigue-syndrome-treatments 'Betty Ross will be narrating the Audio book versions of Dr Perrin's books. Looks like Perrin is after the LC market. .
I’ll be honest I rarely make comments anywhere along these lines but I doubt someone who is a pwme would ever write that they didn’t want a cure developed - why would you? so that very kind makes me suspicious of the source no matter how much someone might think it helped them for now, as long as they keep going and it ‘keeps working’ they can try and claim ‘some people don’t like pills’ but that’s nonsense in this case - a cure /treatment could be anything including like insulin for diabetes is replacing what others bodies would do or something with less (or more) side effects than this Perrin thing. but even if you thought it worked for you you’d be aware your children or others children would be having their lives blighted and this wasn’t going to cut it for those and particularly not for serious cases - unless you just don’t inform yourself of any others experience or care of it enough to really not be in a position to speak for them (given it’s clear there are many it hasn’t worked for)
Perrin is off to Beverly Hills in January 2025 - to teach - 'Three-day course on the diagnosis and treatment using The Perrin Technique for ME/CFS, Fibromyalgia and Long-COVID.' https://theperrintechnique.com/events/ Lucrative .
'Dr Perrin is a Registered Osteopath, Neuroscientist and Specialist in Chronic Fatigue Syndrome ME/CFS. He is Honorary Clinical Research Fellow at The School of Health Sciences, Faculty of Biology, Medicine and Health at The University of Manchester. Dr Perrin qualified in 1984 from the British School of Osteopathy in London. He has extensive experience treating top sportsmen and women including Olympic athletes. In 1991 he was appointed official osteopath to the World Student Games, Sheffield. Dr Perrin’s research since 1989 into ME/CFS has expanded our knowledge of the disease and how to diagnose and treat it. In July 2005 he was awarded a doctorate by the university of Salford, UK for his thesis on the involvement of cerebrospinal fluid and lymphatic drainage in CFS/ME. Since 2007 he has also held the academic post of Honorary Senior lecturer at the Allied Health Professions Research Unit , University of Central Lancashire, in Preston, UK. He was appointed member of the scientific committee for the 2nd 3rd and 4th World Congress on Neurobiology and Psychopharmacology affiliated with the European Association of Psychiatrists Annual Conference, Greece. In 2015 he joined the international faculty of the German School of Osteopathy, Hamburg; and teaches osteopathic theory and practice to students in colleges all over Europe. He has lectured internationally and in the UK to ME/CFS patient groups and the medical profession on the manual diagnosis and treatment of ME/CFS. He has published papers in major medical journals including the BMJ and is the author of the bestselling book The Perrin Technique: How to beat chronic fatigue syndrome/ME published by Hammersmith Press, London in 2007. His new book, The Perrin Technique 2nd Edition: How to diagnose and treat chronic fatigue syndrome/ME and fibromyalgia via the lymphatic system of the brain is also published by Hammersmith Press, London in March 2021. Dr Perrin is a vice-patron of The University College of Osteopathy and in 2015 was the recipient of the inaugural Research and Practice Award from the Institute of Osteopathy. He is a founder member of the newly formed International Osteopathic Research Group and still continues to run clinics in Manchester and London specialising in the treatment of ME/CFS and Fibromyalgia.' https://www.bap.org.uk/summermeetingspeaker.php?speakerID=246
Can any science literate types please do an assessment of Perrins claims about the lymphatic system and ME (and long covid). Perrin focusses on lymph to the exclusion of all other body systems and tries to convince others that lymphatic sluggishness is the cause and the perpetuating factor in ME and LC.
As far as I know Perrin hasn't done any clinical trial of his method. His PhD research was laughably bad. For me that's enough to doubt everything he says. It's all self promotion, not science.
I know, but Perrin has an avid and vocal following of patients and Perrin therapists (3 days training) who are misinforming the public via the national press - and the only people contradicting them are ME patients who are in the know. I'd just like some science literate backup for countering the Perrin publicity.
They claim there was an NHS Trial. It wasn't about the effectiveness of Perrin but was on Perrin's own diagnosis method. I do not have the stamina to go into it. He told a guy who had botched spinal surgery followed by fatigue that he was "a textbook case of ME". It looks like Perrin, as well as LP Parker, have redefined ME as something it isn't, and their redefinitions are what they claim to cure. What I need is someone to debunk the 'lymph is at the heart of ME' statements. His fans are determined.
In that case I'd just point out for the sake of other readers that there's no evidence, and leave it at that. There's no way to persuade fanatical fans of alt med.
It's not about trying to convince the Perrin fans, but to intervene in their persuading the newspaper reading public.
