Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Discussion in 'Petitions' started by Hutan, Sep 4, 2023.

  1. Trish

    Trish Moderator Staff Member

    Messages:
    55,927
    Location:
    UK
    @Jonathan Edwards and @Caroline Struthers, is it normal practice for journals to publish a review article that is exactly the same as one they published 5 years ago as if it were a new review? Is there some sort of publishing ethics body to prevent this?
     
    Lilas, Keela Too, Ash and 16 others like this.
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    15,392
    Location:
    London, UK
    It is not normal practice.
    I may be wrong but it seems a flagrant misuse of editorial powers and the editor in chief should resign.
    We were told that the old review could not be removed because of a rule newly created to make it impossible. Pretending that it is now a new publication without any peer review seems a farce.

    It is worth remembering that there was a point in the process where reviews were gathered 'more widely' (beyond psychological medicine) to assess the Larun output as a result of concerns about objectivity. That now seems to belong to a different universe.
     
    Lilas, Ash, Sean and 22 others like this.
  3. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    4,170
    Location:
    UK
    It's just amazing how there's no kind of not-marking-your-own-homework ethical enforcement authority to appeal to in this situation.
     
    Lilas, Ash, Sean and 15 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    15,086
    Location:
    UK West Midlands
    Good to see so many new supporters signing the petition almost at 13,500 now. :thumbup:
     
    Ash, Sean, Lou B Lou and 10 others like this.
  5. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

    Messages:
    1,598
    Location:
    UK
    This is on top of the farce of the “living systematic review” which managed to do meta analyses of single studies to produce different results from the original studies (which were themselves flawed). I suspect some of the same people involved too.

    PACE has been used to teach university students how not to conduct trials. The BPS enthusiasts are now giving us an object lesson in scientific slight of hand. They appear to have gone into full-on post-truth mode now, as though they don’t even care how blatant their dishonesty is. We can’t discuss politics on here but there are many parallels with what is happening in certain parts of the world.
     
    Lilas, EzzieD, Binkie4 and 14 others like this.
  6. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    5,993
    Location:
    Aotearoa New Zealand
    @Yann04 has a lot of great friends :trophy@
     
    EzzieD, Ash, Deanne NZ and 10 others like this.
  7. Hutan

    Hutan Moderator Staff Member

    Messages:
    29,851
    Location:
    Aotearoa New Zealand
    I had previously commented that a 2019 review was becoming more irrelevant every day, that it could easily be superseded by a new, better review, Cochrane or not. Changing the publication date, the 'old wine in new bottles' trick is certainly a clever trick.

    But, it is also a trick that it is easy for us to explain, and very easy for us to prove that it has been done. It is surely the latest twist in the tale that gets this story over the line as far as making it a scandal that is newsworthy beyond our community. If there is any justice in the world, if there are any people of integrity in Cochrane and the people who fund them, then surely this is a step too far. It certainly smacks of desperation, the people behind this could not face a careful unbiased analysis of the evidence.
     
    Last edited: Dec 19, 2024 at 9:18 PM
    Lilas, EzzieD, Ash and 16 others like this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
    29,851
    Location:
    Aotearoa New Zealand
    I've changed the title of the petition to
    Cochrane: Withdraw the harmful 2019/2024 Exercise therapy for CFS review
    for now.

    We probably need to add an update as an edit to the 'Why this petition matters', and we'll get another petition update out before Christmas.
     
    Lilas, EzzieD, Ash and 16 others like this.
  9. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    2,479
    I remember this, I think. Wasn't he quoted in Kate Kelland's Reuters piece about how activists were trying to spike a great exercise review?
     
    EzzieD, Ash, Binkie4 and 10 others like this.
  10. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    2,479
    No, it is not normal. It is very unethical.
     
    Lilas, EzzieD, Keela Too and 22 others like this.
  11. Yann04

    Yann04 Senior Member (Voting Rights)

    Messages:
    1,035
    Location:
    Switzerland (Romandie)
    Hahaha I did see a couple on there but the vast majority of the new signees are from the MEA newsletter I think.
     
    Chestnut tree, Ash, bobbler and 7 others like this.
  12. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    2,479
    '
    Just to be clear on this, I only know of this at my own place, the School of Public Health at UC Berkeley. It has been used in epidemiology graduate seminars. Plus, Bruce Levin, a Columbia biostatistician, gave a talk there called "How NOT to Conduct a Clinical Trial." Robert's statement is definitely true but--as far as my personal knowledge goes--it only applies to Berkeley students. I am sometimes concerned this claim has morphed into a general statement as if it has happenned a lot and at many universities.
     
    Lilas, EzzieD, Chestnut tree and 14 others like this.
  13. Yann04

    Yann04 Senior Member (Voting Rights)

    Messages:
    1,035
    Location:
    Switzerland (Romandie)
    I vaguely remember Ron Davis saying he used it to teach at stanford too but perhaps my memory is fuzzy.
     
    Last edited: Dec 19, 2024 at 8:20 PM
    Lilas, EzzieD, Ash and 4 others like this.
  14. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    15,086
    Location:
    UK West Midlands
    BrianHughes also teaches about it doesn’t he??
     
    Lilas, EzzieD, Ash and 5 others like this.
  15. Hutan

    Hutan Moderator Staff Member

    Messages:
    29,851
    Location:
    Aotearoa New Zealand
    Just noting the timing of this announcement, days before Christmas. I doubt that was chance. It's like how governments drop bad news on a Friday, knowing that the journalists won't be working for two days, and hoping that by Monday everyone's attention will be on the next thing.
     
    Lilas, EzzieD, Keela Too and 17 others like this.
  16. Yann04

    Yann04 Senior Member (Voting Rights)

    Messages:
    1,035
    Location:
    Switzerland (Romandie)
    I sincerely hope you’re wrong. But a part of me knows you’re right.
     
    EzzieD, Chestnut tree, Ash and 9 others like this.
  17. Hutan

    Hutan Moderator Staff Member

    Messages:
    29,851
    Location:
    Aotearoa New Zealand
  18. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,842
    Location:
    Canada
    It's kind of funny how "peer review" is held up as some sort of authority when it explicitly translates into "no oversight" and sometimes can be "my buddy down the hall".

    When you've seen enough of this, "was it peer-reviewed?" is such an inane comment since it does not provide any actual quality control. This system has held up on the fiction of academics being better people than the average Joe, and in this case we have the double appeal to authority of "doctors wouldn't do something to harm their patients", when actually both propositions are complete fantasy.

    It should be like that. Just like all police officers should be ethical people and judges should have, you know, good judgment, but in reality no system can ever work like that. And this remains true, academia functions like this, but it doesn't work. In truth, peer review has even less value than a "QC passed" sticker on a piece of technology. It may mean that this part works, according to the manufacturer, and that's all it really means.
     
    EzzieD, Chestnut tree, Yann04 and 5 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,842
    Location:
    Canada
    It's also not really convincing in itself, as the PACE trial is definitely taught at more universities as a great example of high quality evidence-based medicine.

    For sure one side of this is correct and the other isn't, but that hardly matters. What matters is what people believe. Even in academia. Maybe especially in academia. So many beliefs.
     
    EzzieD, Yann04, bobbler and 1 other person like this.
  20. bobbler

    bobbler Senior Member (Voting Rights)

    Messages:
    3,962
    isn't Wednesday the news day for getting things to the media too?
     
    Yann04 and Peter Trewhitt like this.

Share This Page