Chandelier
Senior Member (Voting Rights)
This thread is Inspired by a post on Twitter by the one and only @ME/CFS Science Blog
1) An overview of positive developments in ME/CFS research
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect five biobanks across the continent.
2) In the UK, the government invested £4.75 million in SequenceME. It will measure the whole genome of thousands ME/CFS patients in high resolution so that rare mutations can be found.
3) The WE&ME Foundation launched an ambitious grant program that was co-developed by members of the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project.
4) In Norway, the research team of Fluge & Mella is proceeding with ResetME-study: a randomized trial of the cancer drug daratumumab with funding for the Norwegian ME Association. A pilot trial already showed positive results
5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid.
6) The Netherlands has already launched its ME/CFS research program with a budget of €32.9 million. It includes biobanks and a collaboration with the brain bank to collect and investigate human brain tissue.
7) Less is happening in the US but there was a 3 million NIH grant for the research team of Nancy Klimas and Luboc Nathanson and in Florida. It will investigate exposure to toxic mold and its impact on the immune system of ME/CFS patients.
8) In Australia, Dr. Christopher Armstrong’s team received $1 million in government funding for their project "Energy inefficiency in Long COVID and ME/CFS."
Thank you so much to everyone involved who is working hard to achieve scientific progress, @Chris Ponting, @MelbME, @Jonathan Edwards, @Andy and all the many others!
PS: moderators, would it be possible to create an official account for the WE&ME Foundation?
I‘m sure I’m not the only one who would love to be able to high-five them, too.
1) An overview of positive developments in ME/CFS research
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect five biobanks across the continent.
2) In the UK, the government invested £4.75 million in SequenceME. It will measure the whole genome of thousands ME/CFS patients in high resolution so that rare mutations can be found.
3) The WE&ME Foundation launched an ambitious grant program that was co-developed by members of the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project.
4) In Norway, the research team of Fluge & Mella is proceeding with ResetME-study: a randomized trial of the cancer drug daratumumab with funding for the Norwegian ME Association. A pilot trial already showed positive results
5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid.
6) The Netherlands has already launched its ME/CFS research program with a budget of €32.9 million. It includes biobanks and a collaboration with the brain bank to collect and investigate human brain tissue.
7) Less is happening in the US but there was a 3 million NIH grant for the research team of Nancy Klimas and Luboc Nathanson and in Florida. It will investigate exposure to toxic mold and its impact on the immune system of ME/CFS patients.
8) In Australia, Dr. Christopher Armstrong’s team received $1 million in government funding for their project "Energy inefficiency in Long COVID and ME/CFS."
Thank you so much to everyone involved who is working hard to achieve scientific progress, @Chris Ponting, @MelbME, @Jonathan Edwards, @Andy and all the many others!
PS: moderators, would it be possible to create an official account for the WE&ME Foundation?
I‘m sure I’m not the only one who would love to be able to high-five them, too.
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