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Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

Discussion in 'Resources' started by SNT Gatchaman, Jun 23, 2023.

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  1. Ravn

    Ravn Senior Member (Voting Rights)

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    Excellent news. Thanks for pushing this @Hutan :thumbup:
     
    Ravn, Jul 12, 2023
    #21
    MEMarge, Simbindi, Starlight and 4 others like this.
  2. Hutan

    Hutan Moderator Staff Member

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    The Canterbury Health Pathways team has let me know that they will inform teams in other regions about the webinar. Probably wouldn't hurt to enquire if you live in a region where HP is used.
     
    Hutan, Jul 20, 2023
    #22
    Simbindi, Amw66, alktipping and 7 others like this.
  3. Hutan

    Hutan Moderator Staff Member

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    Hutan, Sep 2, 2023
    #23
    Sean, Simbindi, Trish and 1 other person like this.
  4. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    I've had very positive feedback from a Mum of a teen after I recommended Dr Cathy Ferguson, who happens to be local for this family. Even if there aren't specific treatments available to us yet, there is most definitely sensible advice to avoid worsening and optimise the potential for natural recovery. Brava Cathy!
     
    SNT Gatchaman, Sep 2, 2023
    #24
    alktipping, oldtimer, Sean and 9 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    This is a great resource . For newly affected it will be priceless .
    Thanks to all involved , information such as this really will make a difference .
     
    Amw66, Sep 2, 2023
    #25
    oldtimer, Sean, MEMarge and 6 others like this.
  6. obeat

    obeat Senior Member (Voting Rights)

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    I wrote to a physio (who treated my mum) about post exertional malaise and included this link.
    He replied

    That sounds like a good subject for our next inservice, so will disseminate to our team.
     
    obeat, Sep 21, 2023
    #26
    alktipping, Ravn, RoseE and 10 others like this.
  7. RoseE

    RoseE Senior Member (Voting Rights)

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    Please feel free to send suggested changes to m.e.awareness.nz@gmail.com or to ask for a copy of the powerpoint. We are happy for others to use the powerpoint for their own use.
     
    RoseE, Sep 22, 2023
    #27
    MEMarge, Amw66, alktipping and 5 others like this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
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    Location:
    Aotearoa New Zealand
    I want to highlight this video that was originally posted on the NZ news thread by @Ravn. Dr Cathy Stephenson features. I didn't get around to listening to it at the time. It's a Goodfellow podcast, which is weird given the atrocious recent Goodfellow 'CFS/ME' MedCase document by Bruce Arroll.

    https://www.goodfellowunit.org/podcast/myalgic-encephalomyelitiscfs

    As Ravn says, it is well done, and there is a very moving section by Noah, a 16 year old boy. Articulate and sensible contributions from Rose Silvester also. I think it works well as a resource for doctors.
     
    Last edited: Oct 6, 2023
    Hutan, Oct 6, 2023
    #28
    MEMarge, shak8, RedFox and 7 others like this.
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