PPS new name for MUS - Integrated Care for People with Persistent Physical Symptoms 02/10/2018

[ladycatlover]

And I thought PPS stood for Post Polio Syndrome.

 

[alex3619]

When I read PPS, in the way they use the acronym, what I am thinking is FFS. The more polite interpretation of FFS is For Freak's Sake. The less polite form is pithier.

 

[obeat]

Yes why is Julia newton there. Vincent Deary is not good, I’ve just been reading the kings College London fatigue service website which hasn’t been updated for years. Vincent Dearys views are Entirely deconditioning reversible with rehabilitation.

In 2013 Newton was considering a trial of exercise therapy in primary biliary cirrhosis. In PBC antimitochondrial antibodies are present. The trial never happened presumably because concerns about GET became more vocal ( my interpretation) Unraveling the biological mechanisms of fatigue is complex but it occurs in so many illnesses that it ought to be a top priority.

 

[Cinders66]

I think JN is too happy t associate with these people and is ambiguous in her papers and approach to exercise, eg at a recent CMRC she was supportive of the poles doing a get trial, and hinted that the lack of patients knowledge/prejudice about it over there might be interesting