As some of you may have seen on Twitter, I recently wrote a song about a friend of mine who has ME:
Please share if you like it.
YouTube description:
I met Alex in hospital in 1999, in a neurology ward for patients diagnosed with Myalgic Encephalomyelitis (also known as ME/CFS). We were given cognitive behavioural therapy (CBT) and told that if we followed the advice we were given we would recover. We both did everything we were told but neither of us have recovered or even improved sufficiently to see each other again since we were discharged from hospital nearly two decades ago.
Alex loved to ride horses before she was unwell. Seeing a photograph of her sitting on a horse on the beach inspired me to write this song. Knowing her has given me great strength during some very difficult times.
I wrote a little about my experience of being in the hospital where we met in my essay, Perceptions of Myalgic Encephalomyelitis:
http://strangerandstranger.net/miscellanea.htm#perceptions
Proposed project for a protest song
I'm currently working on an arrangement of Blowin' in the Wind with my own lyrics about some of the issues affecting people with ME. I'm thinking about turning it into a collaborative project, using the voices of people with ME from around the world.
My idea was for a different person to sing each line of the song, and for everybody to sing the chorus as a virtual choir.
If anybody would like to get involved, please let me know. My knowledge of music production is limited to recording on my iPad with Garageband and a USB mic in my bedroom, and I'm very limited in my capacity, so if anyone feels that they could help on the technical/production side, that would be great.
I will post my solo recording of the song shortly, so please watch this thread for updates.
I'm also working on some other songs about ME, but they may take a bit longer to come to fruition.