Provide feedback to Google re NHS ME/CFS info

[Sly Saint]

Almost everytime I do a search on Myalgic encephalomyelitis or chronic fatigue syndrome the most prominent info that comes up is from the NHS still saying that the treatments are exercise programs and 'talking therapies'.

This is not helping people, particularly giiven the current situation with the new NICE guidelines.

You can click on feedback (which I've just done, I chose the 'controversial' button) to tell them that the NICE guidelines are about to be changed etc..

 

[Hoopoe]

It's not a problem with Google but a problem with the NICE guidelines or more generally the lack of quality control applied to the relevant studies.

 

[Adrian]

Bing pointed to patient.info first followed by the CDC and NHS

What I found interesting was this box at the side which seems to be info they have collated and not very good. There claims of >1m cases per year is weird.

A disorder characterised by extreme fatigue with no underlying medical condition.
Very common (More than 1 million cases per year in UK)
Often requires lab test or imaging
Treatments can help manage condition, no known cure
Can be lifelong
The exact cause for the condition is unknown. It is associated with viral infections, immune disorders, and hormone imbalance. Symptoms include extreme fatigue, particularly lasting for more than a day after physical or mental activities. There is no cure for CFS. Treatment aims at providing relief from symptoms.
Symptoms
Some of the common symptoms of chronic fatigue syndrome include:

• Malaise - a general feeling of discomfort or illness
• Extreme fatigue
• Body pain
• Poor concentration
• Loss of memory
• Sore throat
• Tender lymph nodes
• Pain in multiple joints
• Headache
• Rest or sleep does not help in refreshing
• Sleep Problems
• Extreme exhaustion or tiredness that lasts for more than a day following Physical or mental activity

Treatments
There is no cure for CFS. Treatment aims at providing relief from symptoms.
Medication

• Antidepressants: They are given to treat depression, and improve sleep.
  Amitriptyline · Doxepin
• Nonsteroidal anti-inflammatory drugs (NSAIDs): It is given for pain relief.
  Naproxen · Ibuprofen
• Anxiolytics: Used to treat anxiety.
  Alprazolam · Lorazepam

Self care

• Try relaxation techniques such as yoga and meditation.
• Maintain a regular regimen for the suggested exercises.
• Limit caffeine intake to prevent insomnia.
• Create a sleep routine.
• Learn to manage physical and emotional stress.

Therapies: Cognitive behaviour therapy · Graded exercise program
Causes
The cause of CFS is unknown. Researchers speculate that viruses, hypotension (unusually low blood pressure), a weakened immune system, and hormonal imbalances could all be contributing factors. It’s also possible that some people are genetically predisposed to develop CFS.
People also search for
Fatigue
Fibromyalgia
Epstein–Barr virus
Orthostatic intolerance
Clouding of consciousness
Learn more
Consult a medical professional for advice

 

[DokaGirl]

"No underlying condition found...", however...causes could be put further up on the list. Some don't read past the heading and a couple sentences, as everyone knows.

 

[Creekside]

While checking for something else, I noticed that Google's 'list of common questions' showed this:

Does Graded exercise therapy work for CFS?
A recent Cochrane review of graded exercise therapy (GET) for chronic fatigue syndrome (CFS) concluded that GET is effective and safe (Larun et al., 2017).Oct 8, 2018

 

[RedFox]

That question pops up when I Google me cfs graded exercise therapy. I left them feedback, saying the CDC, NY DOH, and NICE don't recommend GET. Maybe if many people comment on it they'll change it.