READ FIRST: Welcome to the MEpedia subforum!

Welcome to the subforum on MEpedia, the place to discuss edits and page-creation on the myalgic encephalomyelitis wiki.

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Goals:
To discuss MEpedia editing and referencing, and get ideas for gaps / what's missing.

All are welcome!

Beyond that, give and receive constructive criticism gracefully and graciously and avoid personal attacks. Remember there is always a human on the other side of the computer!

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MEpedia
The basic goals of an MEpedia science article are to:

• Inform the reader of the basics
• Provide resources via links and citations so the reader can learn more

Aim as close to the objective truth as possible without bias, and avoid the omission of credible sources with which you may disagree.

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Don't want to chat, just ready to roll up your sleeves and go?

How to Contribute -- a general information page about how to add to MEpedia
The Science Guidelines -- please read carefully!
MEpedia Facebook Group -- if you prefer Facebook, or if you want some quick answers and no one is fast enough to help here, get added to the group!
MEpedia formatting for different page types -- please use these outlines for article types

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Articles that need some love:

Pages that are higher priority
Very short articles that should be longer
Stubs that should be expanded

 

I've done a few edits and have a few in mind but starting new pages was tricky, i don't get how to do the styling. The page you linked above is too complicated for me to digest so its probably best i just stick to some edits here and there.

 

@Alvin I'm going to do an instructional video soon.

 

Hi @Alvin, you can find copy and paste styles here:
https://me-pedia.org/wiki/MEpedia_article_outlines

And start a new page here:
https://me-pedia.org/wiki/How_to_contribute#How_do_I_create_a_new_page.3F

 

The pedant in me needs a clarification . By "discuss edits" I presume you don't just mean the mechanics of editing, but discussing potential content, and potential changes to content. I am fully behind this idea, but (being as I don't have clue how this is normally all done) am also worried it might turn into a free for all, with edits and counter edits. As well as this sub-forum, is there any kind of process/procedure applied when updating the wiki?

 

Welcome to the idea behind wikipedias, where anybody can edit the text.

 

Thanks for the links but its the same problem, with my cognitive dysfunction i can't digest those anymore.
I can retrieve information i already know, i can do some logic, i can explain some things but i can't comprehend complicated articles, long articles, books or easily read flyers anymore. My math ability is also almost gone.

 

Is our first entry going to be on chaos theory as applied to ME?

 

Good idea but i think we should start with the LOLcat ME/CFS bible and move on to creating the LOLcat ME/CFS diagnosis criteria.

 

....yes.

 

HAHAHA ILU GUYS.

 

I didn't know that there was a human on the other side of my computer. Does that mean he or she is watching me through the camera while I type? Why isn't he/she more helpful when I need to curse at the computer?

Anyway, from a braindead supporter, well done!

 

If I can make a suggestion to anybody reading this with sufficient brainpower and motivation - summarising what has been found in this thread, https://www.s4me.info/threads/who-w...in-support-groups-leads-to-poor-outcome.5109/, about how the "membership of a patient association leads to poorer outcomes" meme came about and putting it on MEpedia seems a great idea to me. I have put it on my personal "things to do" list, unfortunately the list is far too long and, being realistic, I probably won't get to it.

 

I was actually thinking it would make a good diagram, arranged chronologically.

Generally speaking, it would be a fabulous project for MEpedia to make a list of statistics and claims, and the references that support them. I will start a thread.

[Edit: done -- https://www.s4me.info/threads/a-masterlist-of-me-facts-the-citations-that-support-them.5315/]

 

This sounds so much like my earliest experiences of radio (or "the wireless" as it was then). I still recall my feeling of awe at how so many people could squeeze into it, and remember being bitterly disappointed when my Dad opened it up to change a valve (remember them?), and these fascinating tiny people were nowhere to be seen .

 

@JaimeS I'd disagree that the science pages are to convey the basics. Some of them might get *quite* technical, especially pages that aren't about broad topics (myalgic encephalomyelitis, autonomic nervous system) but rather very specific pathways, receptors, chemical compounds (eicosanoid, inflammasome, etc.). I think the key rather is that every page is as accessible as possible. The very first sentence or opening paragraph (depending on the length and nature of the page) needs to convey the basic idea of the page to a reader with an 8th or 9th grade reading level. From there, I think the page can get as technical as it needs to be (while hopefully still being as clear as we are able to be).

My hope is that discussions in this forum can be less about debating the content matter or the question of whether X is "true" (where so many conversations on forums end up leading) and focus more on how to improve the page in question by making it more complete, accurate, readable, etc.

For example, one could debate whether non-cytolytic enteroviral infections or a/the cause of ME, but that's a different question than how to improve this page: https://www.me-pedia.org/wiki/Non-cytolytic_enterovirus or what on this page is or is not accurate. Conversations about the former should probably be moved to a different sub-forum.

Put another way, whether something is accurate (i.e., it accurately reflects the source material and its quality) is a different question from whether it is true (we may not have the evidence to know).

Also, I think it's a pretty big assumption that we are all humans on the other side of the computer @JaimeS. A bit speciest, don't you think?

 

Perhaps, but if Commander Data offers to write MEpedia for us i'm sure we would all be overjoyed. I could also use his help on an unrelated ME/CFS piece i am working on.

 

Hey, @JaimeS Can I just use this thread to say I’d be v grateful to anyone who can correct the website link under my novel to go to my actual blog rather than to Judy Mikovits’ PLAGUE book/site, I have no idea who put in that link. I flagged this up a long time ago on Twitter to MEpedia, I just simply don’t know how to edit the embedded link.

https://me-pedia.org/wiki/The_State_of_Me

You can see on righthand side there is the photo of my book and at bottom the website link goes to Mikovits’ book PLAGUE.

Would be great if someone who has the necessary skills could put my blog in instead:

https://velo-gubbed-legs.blogspot.co.uk

Many thanks in anticipation, not hugely urgent but has been niggling me for a long time!

 

No, no. That's urgent.

Here's how I did it:

• I clicked Edit at the top of the page.
• I clicked on the image. It offered me the option to edit the image. I said yes.
• I deleted the link.
• I made sure to hit 'save changes' at the top of the page.
  
• MEpedia will always ask you if this is a minor change, and to describe the edit. I called it minor and said I'd deleted the link.

Done!

 

You are a star, JaimeS, thank you so much, would never have occurred to me to click on the actual photo to edit, that’s why I was so puzzled. Good to have it fixed. You do provide speedy service!