There's a reason MS isn't called occasional mobility issues syndrome, and schizophrenia isn't called chronic delusion syndrome. Or autism chronic social awkwardness syndrome. It's much easier to dismiss and misunderstand an illness if it's named after only one of the many symptoms. Coincidentally, ADHD is named like that and it's the most contested illness in psychiatry by far. The thing that saved those patients are stimulants working extremely well for the symptoms. They really lucked out, otherwise they would have been screwed like we are. 90% of doctors still have no idea what CFS is supposed to be and never heard the term ME.