Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

[Hutan]

There's a lot we don't understand.

My son went from mild/moderate to bedridden/barely conscious after one sports game (although he was only that severely ill for a month). My daughter kept pushing herself physically in substantial ways, and crashing, and yet recovered after a couple of years.

I guess a precautionary approach would suggest that avoiding PEM is probably a good thing to try to do, given how many people say that activity caused a deterioration that they didn't recover from. But, the people who did the body-building sessions and crashed and went on to recover probably aren't posting on that reddit thread. I think we need to keep in mind the range of illness trajectories, and avoid sounding certain.

 

[Utsikt]

I think we need to keep in mind the range of illness trajectories, and avoid sounding certain.

For sure. There is no way to predict what’s going to happen.

But I don’t think I could ever advice anyone to not do what they can to avoid PEM. And I’d say to not take it as a guarantee that they will get better or fully recover to their baseline (whatever that is) after a crash.

It’s a weird thing to be in that kind of a limbo. You might still recover, but you also very well might not. How do you adapt?

 

[Sean]

You might still recover, but you also very well might not. How do you adapt?

The most important advice would be to not pay any attention to advice from the psycho-behavioural school.

 

[SNT Gatchaman]

Often this thread contains dismal posts describing medical abuse. This is... quite different. Just now posted in the long haulers' sub. I don't know what to say, but it made me laugh.

Spoiler: Ahem... "adult" themes

Just Came off a 24 Hour Cocaine and Hooker Bender

I’m 3.5 years into LC. I have good and bad days. There are times when things calm down in my body and I feel perhaps 75% recovered. There are briefer times when I feel closer to 85% and some fleeting moments feeling 90%.

I’ve had a few good days to the extent that I was good enough to hit some cocaine and got a few hookers. This is a post for motivation. I would have never thought when I first started LC that I would get to this point. I have setbacks and I push things too hard, but I’m evidence that progress can be made along a recovery trajectory.

Spoiler: Somebody please get the BPS people on board

I can't wait for the trial acronyms. REHAB (Rehabilitation through Hookers And Blow)?

 

[Yann04]

Often this thread contains dismal posts describing medical abuse. This is... quite different. Just now posted in the long haulers' sub. I don't know what to say, but it made me laugh.

Spoiler: Ahem... "adult" themes

Just Came off a 24 Hour Cocaine and Hooker Bender

I’m 3.5 years into LC. I have good and bad days. There are times when things calm down in my body and I feel perhaps 75% recovered. There are briefer times when I feel closer to 85% and some fleeting moments feeling 90%.

I’ve had a few good days to the extent that I was good enough to hit some cocaine and got a few hookers. This is a post for motivation. I would have never thought when I first started LC that I would get to this point. I have setbacks and I push things too hard, but I’m evidence that progress can be made along a recovery trajectory.

I bought some viagra but didn’t end up needing it. The coke was good and so were the girls. I’m 1 day removed from that bender and strangely don’t feel hungover.

Spoiler: Somebody please get the BPS people on board

I can't wait for the trial acronyms. REHAB (Rehabilitation through Hookers And Blow)?

Then they’ll diagnose you with PASC
[Primary Addiction to Sex and Cocaine]

 

[SNT Gatchaman]

Finally. The secondary gains we've always been promised

 

[Trish]

I don't know what to say, but it made me laugh.

Your REHAB response made me snort with laughter.

 

[Hutan]

snort with laughter.

that's a more legal option, I guess still enjoyable.

 

[SNT Gatchaman]

Pitt Is Launching a Chiropractic Program—What Happens When Pseudoscience Gets an Academic Seal of Approval?

The University of Pittsburgh, a highly respected institution in allied health and medical research, recently announced the launch of a Doctor of Chiropractic program. […] It risks legitimizing pseudoscience under respected academic brands.

It sets a dangerous precedent. If Pitt, a flagship institution, launches a DC program without clear reform or regulatory safeguards, it opens the door for other less rigorous academic centers to follow, further blurring the line between science and pseudoscience.

This isn't about professional gatekeeping, it’s about protecting patients and ensuring that academic medicine doesn’t lend credibility to unregulated, unscientific practices. Quackery isn't just silly, it delay legitimate care and hurts patient outcomes.

"Evidence-based chiropractor" replies in defence, quoting the proposed curriculum, implying it's fully in line with evidence-based medicine —

The curriculum includes an extensive scope of topics related to the skills, knowledge, and behaviors required in chiropractic practice. The history, scope, and nature of the contemporary practice of chiropractic will be covered in detail. Skill development in manual and manipulative procedures will be founded on the principles of biomechanics and kinesiology, integrated with the skills and knowledge of rehabilitation and exercise science. The biopsychosocial approach to pain syndromes will be stressed as the foundation for a deep understanding of the role of the chiropractic practitioner in the emerging value-based US healthcare system.

I think @rvallee's head may explode.

 

[RedFox]

Pitt Is Launching a Chiropractic Program—What Happens When Pseudoscience Gets an Academic Seal of Approval?





"Evidence-based chiropractor" replies in defence, quoting the proposed curriculum, implying it's fully in line with evidence-based medicine —



I think @rvallee's head may explode.

That's my city. I'm not impressed.