Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

There's a lot we don't understand.

My son went from mild/moderate to bedridden/barely conscious after one sports game (although he was only that severely ill for a month). My daughter kept pushing herself physically in substantial ways, and crashing, and yet recovered after a couple of years.

I guess a precautionary approach would suggest that avoiding PEM is probably a good thing to try to do, given how many people say that activity caused a deterioration that they didn't recover from. But, the people who did the body-building sessions and crashed and went on to recover probably aren't posting on that reddit thread. I think we need to keep in mind the range of illness trajectories, and avoid sounding certain.
 
Hutan said:
I think we need to keep in mind the range of illness trajectories, and avoid sounding certain.
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For sure. There is no way to predict what’s going to happen.

But I don’t think I could ever advice anyone to not do what they can to avoid PEM. And I’d say to not take it as a guarantee that they will get better or fully recover to their baseline (whatever that is) after a crash.

It’s a weird thing to be in that kind of a limbo. You might still recover, but you also very well might not. How do you adapt?
 
Often this thread contains dismal posts describing medical abuse. This is... quite different. Just now posted in the long haulers' sub. I don't know what to say, but it made me laugh.

Just Came off a 24 Hour Cocaine and Hooker Bender

I’m 3.5 years into LC. I have good and bad days. There are times when things calm down in my body and I feel perhaps 75% recovered. There are briefer times when I feel closer to 85% and some fleeting moments feeling 90%.

I’ve had a few good days to the extent that I was good enough to hit some cocaine and got a few hookers. This is a post for motivation. I would have never thought when I first started LC that I would get to this point. I have setbacks and I push things too hard, but I’m evidence that progress can be made along a recovery trajectory.

I can't wait for the trial acronyms. REHAB (Rehabilitation through Hookers And Blow)?
 
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SNT Gatchaman said:
Often this thread contains dismal posts describing medical abuse. This is... quite different. Just now posted in the long haulers' sub. I don't know what to say, but it made me laugh.

Just Came off a 24 Hour Cocaine and Hooker Bender

I’m 3.5 years into LC. I have good and bad days. There are times when things calm down in my body and I feel perhaps 75% recovered. There are briefer times when I feel closer to 85% and some fleeting moments feeling 90%.

I’ve had a few good days to the extent that I was good enough to hit some cocaine and got a few hookers. This is a post for motivation. I would have never thought when I first started LC that I would get to this point. I have setbacks and I push things too hard, but I’m evidence that progress can be made along a recovery trajectory.

I bought some viagra but didn’t end up needing it. The coke was good and so were the girls. I’m 1 day removed from that bender and strangely don’t feel hungover.

I can't wait for the trial acronyms. REHAB (Rehabilitation through Hookers And Blow)?
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Then they’ll diagnose you with PASC
[Primary Addiction to Sex and Cocaine]
 
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