Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

[Clio]

Shame. Is there another example of something entirely legal (in multiple countries in fact with more legalizing it over time) that is forbidden to talk about on a societal level like this?

I feel like every platform forbids this, but that does nothing to prevent the entirely valid feelings people have about their situation, which just pushes people away from the mainstream into more dark and obscure places.

It also erases the very real problems that need to be talked about, if every single ME/CFS MAID was front and center in people's faces I feel like we would be much closer to a solution for all of us. But instead all of the suffering gets pushed aside, away from view, hiden and othered.

 

[Trish]

In case anyone is unsure of our forum rules on this, Rule 5 d plus the additional note should help.

Spoiler: S4ME rule about discussing suicide

d) Members may not describe or discuss their own or another person’s plans for ending their own life. Members may not describe or discuss methods for ending one's life or link to information about such methods. However, members are free to seek emotional support by sharing their thoughts and feelings about ending their lives, and may discuss the topic in general terms.
Help with dealing with suicidal thoughts here

 

[Axel]

New rule announcement post over at r/cfs:

"We allowed these posts in the past as it was maybe one a month, now it’s multiple per day"

It is the decent thing to do. It is important to be aware of the seriousness of the situation, but there are limits to the support ill persons can give.
There are also other compliance with Reddit’s general rules.

But in some ways, it is to proper journalism to now take over, or an independent forum could collects testimonies and goodbye letters. There must surely be some solution to ensure that patients are no longer on the front line, without leaving those who are passing away to face their final moments alone.
(civilisation ?)

 

[neurophusion]

r/cfs "Rule Update: We are no longer allowing MAID/assisted or planned dying/goodbye posts"

A few weeks ago, a moderator of 'rival' sub-Reddit r/cfsrecovery, posted a diatribe about how r/cfs "is evil and a death cult" because it is skeptical towards brain retraining and allowed discussion of suicide.

The original post has been deleted but some comments remain on that thread.

I wonder how much that had to do with the recent development?

 

[Sean]

Difficult issue, with pros and cons either way. But I understand why they made this policy.

 

[SNT Gatchaman]

"I have referred you to both the endocrinology team initially and then the rheumatology team. They have advised that chronic fatigue syndrome. It comes under the remit of the mental health team. Please contact us if you would like me to refer you to them."