Requests for information/papers/sources/documentation

Are there any studies on how many calories people with ME burn? Is it slightly higher or lower than healthy people at rest? What about during PEM? I became idly curious when thinking about the concept of weight loss, but Google doesn't turn up anything.
 
From memory the NIH ME/CFS study did do some direct calorimetry. They had people staying in insulated chambers. I remember seeing an article about it; a young woman with ME/CFS provided an account of her experience I think. But I can't find any information about it when I google. It would be good to know what the results were.

Ah, here's another account:
A Former Doctor Goes Through the NIH's ME/CFS Intramural Study
Robert spent about three days in the metabolic chamber - a sparse box containing a bed and a toilet that’s designed to produce precise measures of metabolic activity - before and after the exercise test. (I will expand on the metabolic chamber). He wore an EEG, blood pressure and Holter monitor, while in the chamber.Only thirty metabolic chambers exist in the world, and three of them are at the NIH. With 400 metabolic chamber studies underway every year, they're pretty much in use all the time. These airtight 11-by-11.5-foot rooms aren't much to look at or stay in: they come with a bed, an exercise bike, a toilet, and nothing else. Precisely measured meals are delivered through a small, air-locked opening in the wall.

Metal pipes running along the ceiling that measure oxygen consumption and CO2 production allow researchers to precisely calculate an individual's metabolic rate. From the O2 and CO2 readings, researchers can calculate calories burned and what type of fuel (carbs/fats) was used to burn them.
Click to expand...
 
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I really don't know where to begin to search for this. In the last year 2 papers/articles have been published basically dismissing the recent trend of calling psychosomatic by other labels, especially labels like 'functional' that explicitly intend to hide their meaning, and just call them psychological, stop all the useless sugarcoating and admit those people are mentally ill.

Anyone remember that? I'm pretty sure it was in the last year, but I have zero memory of keywords to find them, and there's just too much published in psychosomatics in general to sifter through.
 
 
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