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Requests for information/papers/sources/documentation

Discussion in 'Advocacy Projects and Campaigns' started by rvallee, Jun 10, 2021.

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  1. RedFox

    RedFox Senior Member (Voting Rights)

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    Pennsylvania
    Are there any studies on how many calories people with ME burn? Is it slightly higher or lower than healthy people at rest? What about during PEM? I became idly curious when thinking about the concept of weight loss, but Google doesn't turn up anything.
     
    RedFox, Dec 16, 2022
    #21
    livinglighter, It's M.E. Linda and Peter Trewhitt like this.
  2. Hutan

    Hutan Moderator Staff Member

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    30,179
    Location:
    Aotearoa New Zealand
    From memory the NIH ME/CFS study did do some direct calorimetry. They had people staying in insulated chambers. I remember seeing an article about it; a young woman with ME/CFS provided an account of her experience I think. But I can't find any information about it when I google. It would be good to know what the results were.

    Ah, here's another account:
    A Former Doctor Goes Through the NIH's ME/CFS Intramural Study
     
    Last edited: Dec 16, 2022
    Hutan, Dec 16, 2022
    #22
    livinglighter, Sean, RedFox and 4 others like this.
  3. RedFox

    RedFox Senior Member (Voting Rights)

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    Location:
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    I hope the results will be published in one of the Intramural Study papers.
     
    RedFox, Dec 19, 2022
    #23
    Peter Trewhitt, livinglighter, Hutan and 1 other person like this.
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    Location:
    Canada
    I really don't know where to begin to search for this. In the last year 2 papers/articles have been published basically dismissing the recent trend of calling psychosomatic by other labels, especially labels like 'functional' that explicitly intend to hide their meaning, and just call them psychological, stop all the useless sugarcoating and admit those people are mentally ill.

    Anyone remember that? I'm pretty sure it was in the last year, but I have zero memory of keywords to find them, and there's just too much published in psychosomatics in general to sifter through.
     
    rvallee, Oct 28, 2024
    #24
    Peter Trewhitt likes this.
  5. Nightsong

    Nightsong Senior Member (Voting Rights)

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    Nightsong, Oct 28, 2024
    #25
    Amw66, rvallee, SNT Gatchaman and 1 other person like this.
  6. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,974
    Location:
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    That's the two I was thinking of! You're amazing. Thanks!
     
    rvallee, Oct 28, 2024
    #26
    Peter Trewhitt, Nightsong and Amw66 like this.
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