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Requests for information/papers/sources/documentation

Discussion in 'Advocacy Projects and Campaigns' started by rvallee, Jun 10, 2021.

  1. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    1,245
    Location:
    Pennsylvania
    Are there any studies on how many calories people with ME burn? Is it slightly higher or lower than healthy people at rest? What about during PEM? I became idly curious when thinking about the concept of weight loss, but Google doesn't turn up anything.
     
  2. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,856
    Location:
    Aotearoa New Zealand
    From memory the NIH ME/CFS study did do some direct calorimetry. They had people staying in insulated chambers. I remember seeing an article about it; a young woman with ME/CFS provided an account of her experience I think. But I can't find any information about it when I google. It would be good to know what the results were.

    Ah, here's another account:
    A Former Doctor Goes Through the NIH's ME/CFS Intramural Study
     
    Last edited: Dec 16, 2022
    livinglighter, Sean, RedFox and 4 others like this.
  3. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    1,245
    Location:
    Pennsylvania
    I hope the results will be published in one of the Intramural Study papers.
     
    livinglighter, Hutan and Sean like this.

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