Research news from Bhupesh Prusty

FYI @ME/CFS Skeptic

 

Verbatim transcript of Prof. Bhupesh Prusty’s presentation to the Fatigatio E.V Research Seminar – 14th Sept. 2024
https://docs.google.com/document/d/1T79bGDR1w31zHhS39AXz3wDyhlmvwadg/mobilebasic

 

A couple of years ago, the news from Dr Prusty suggested they were close to a breakthrough based on EBV and mitochondrial fragmentation (the science was beyond me). Does anyone know what happened to that? Much of this sounds like a new venture.

 

Thanks.

I had the familiar sinking feeling of Realising that I written quite a long and thoughtful post on that thread critiquing the pre-print. It was only last year :-(.

But if that was it, it doesn’t amount to much and makes you you wonder where all the hype was coming from. I know researchers like to share their enthusiasm, but I don’t think it’s fair* on patients to raise expectations and hopes so high unless you’ve got something fairly solid.

* Though bear in mind that I am now officially a grumpy old man.

 

A few years ago he tweeted the results of an experiment the he had carried out earlier the same day announcing that he had found two factors in the blood that were likely causing ME. Nothing came of it.

 

I feel researchers are creating hype to pull in funding. At least some of them. Giving the deplorable level of funding the disease is getting I somewhat get it. Most of these hypes only move the field forward marginally, if at all. So I've learned not to expect anything. I guess new patients might get pulled in and let down.

It's one of the reasons I only send my money to the big consortia, Polybio and OMF at the moment. Let them discern if there's any value in some of the research being hyped or if there isn't.

 

2020:
Always keep in mind that when I say one thing, it actually tells you that I know 10 things. I don’t open my mouth until unless things are tested repeatedly under many different conditions.
https://twitter.com/user/status/1233520944645365761