Moderator note: this thread has been moved from one about AfME documents here https://www.s4me.info/threads/actio...-and-work-and-and-employers-guide-to-me.8421/ I wonder if MEpedia should have a Primer for employers @JaimeS @JenB They are pretty much a copy of one another with a few changes to each Primer and work like this can be included on the employer primer.
I came across a really, really good resource on this recently and it's made me consider precisely that. For everyone's edification: https://askjan.org/disabilities/Chronic-Fatigue-Syndrome.cfm I'm feeling pretty weird/bad so I apologize in advance if I'm not as responsive as usual lately. I'll pop this into the #MEAction Slack, though. It sure is easier to agree to support a project than to take it on. If anyone here wants to take this on, #MEAction can help with staff resources and time -- especially in the spring, with Advocacy Week coming up in April and #MillionsMissing in May, a project leader/collaborator from outside the main staff is absolutely key. If anyone feels like they could support this, it would be a great idea. Maybe USA Working Group could help. [Edit: #MEAction links to the following resources on its Patients Portal: USA The American ME and CFS Society have a comprehensive list of resources for applying for disability. Sleepy Girl Guide to applying for Social Security Disability The Massachusetts CFIDS/ME & FM Disability Handbook – information about SSDI and SSI]
I'd love to do it but my ability to organize it is beyond dismal I don't know if it could somehow be possible, i'm full of information but writing/copy editing i can't do as weird as that sounds.
