Should there be a primer for employers?

[Patient4Life]

Moderator note: this thread has been moved from one about AfME documents here
https://www.s4me.info/threads/actio...-and-work-and-and-employers-guide-to-me.8421/


I wonder if MEpedia should have a Primer for employers

@JaimeS
@JenB

They are pretty much a copy of one another with a few changes to each Primer and work like this can be included on the employer primer.

 

[JaimeS]

I wonder if MEpedia should have a Primer for employers

@JaimeS
@JenB

They are pretty much a copy of one another with a few changes to each Primer and work like this can be included on the employer primer.

I came across a really, really good resource on this recently and it's made me consider precisely that.

For everyone's edification: https://askjan.org/disabilities/Chronic-Fatigue-Syndrome.cfm

I'm feeling pretty weird/bad so I apologize in advance if I'm not as responsive as usual lately. I'll pop this into the #MEAction Slack, though.

It sure is easier to agree to support a project than to take it on. If anyone here wants to take this on, #MEAction can help with staff resources and time -- especially in the spring, with Advocacy Week coming up in April and #MillionsMissing in May, a project leader/collaborator from outside the main staff is absolutely key.

If anyone feels like they could support this, it would be a great idea. Maybe USA Working Group could help.

[Edit: #MEAction links to the following resources on its Patients Portal:

USA

• The American ME and CFS Society have a comprehensive list of resources for applying for disability.
• Sleepy Girl Guide to applying for Social Security Disability
• The Massachusetts CFIDS/ME & FM Disability Handbook – information about SSDI and SSI]

 

[DokaGirl]

@JaimeS

Hope you feel less weird /bad soon!

 

[Alvin]

It sure is easier to agree to support a project than to take it on. If anyone here wants to take this on, #MEAction can help with staff resources and time -- especially in the spring, with Advocacy Week coming up in April and #MillionsMissing in May, a project leader/collaborator from outside the main staff is absolutely key.

If anyone feels like they could support this, it would be a great idea. Maybe USA Working Group could help.

I'd love to do it but my ability to organize it is beyond dismal
I don't know if it could somehow be possible, i'm full of information but writing/copy editing i can't do as weird as that sounds.