1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 4th December 2023 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Should there be a primer for employers?

Discussion in 'MEpedia' started by Patient4Life, Mar 3, 2019.

  1. Patient4Life

    Patient4Life Senior Member (Voting Rights)

    Last edited by a moderator: Mar 5, 2019
    Trish, JaimeS, Sean and 2 others like this.
  2. JaimeS

    JaimeS Senior Member (Voting Rights)

    Stanford, CA
    I came across a really, really good resource on this recently and it's made me consider precisely that.

    For everyone's edification: https://askjan.org/disabilities/Chronic-Fatigue-Syndrome.cfm

    I'm feeling pretty weird/bad so I apologize in advance if I'm not as responsive as usual lately. I'll pop this into the #MEAction Slack, though.

    It sure is easier to agree to support a project than to take it on. If anyone here wants to take this on, #MEAction can help with staff resources and time -- especially in the spring, with Advocacy Week coming up in April and #MillionsMissing in May, a project leader/collaborator from outside the main staff is absolutely key.

    If anyone feels like they could support this, it would be a great idea. Maybe USA Working Group could help.

    [Edit: #MEAction links to the following resources on its Patients Portal:

    Last edited: Mar 5, 2019
  3. DokaGirl

    DokaGirl Senior Member (Voting Rights)


    Hope you feel less weird /bad soon!
    Binkie4 and JaneL like this.
  4. Alvin

    Alvin Senior Member (Voting Rights)

    I'd love to do it but my ability to organize it is beyond dismal :banghead:
    I don't know if it could somehow be possible, i'm full of information but writing/copy editing i can't do as weird as that sounds.
    Patient4Life likes this.

Share This Page