skin rashes, itchy skin

[Jonathan Edwards]

I’ve started getting hives really consistently with PEM.

Skin problems often come and go with shifts in body physiology and wellbeing. ME/cfs is not known to include any skin rashes and I doubt it does. Like Trish I would treat this as something to enquire about in its own right without mention of ME/CFS.

 

[Braganca]

Maybe some of you might qualify for a new skin diagnosis like severe dermatitis or chronic urticaria that could be treated with dupilimab — I’ve seen two reports of pwME on Reddit who had improvement in their ME symptoms after being prescribed dupilimab for skin conditions. It works by blocking the effects of interleukin-4 and interleukin-13.. not sure if there’s any evidence for their involvement with ME.

I have neuropathic itch on my arms that onset at same time as my ME but worsened in past two years. I had Botox for migraine which unexpectedly mostly suppressed the itch (it’s done down neck to shoulders so affects nerves going to arms), although it returns a little a few weeks before the next Botox session is due.

 

[Braganca]

Today my carers told me they would be informing social services about my rashes and refusal to see a doctor. They also said that they'd be refusing service and leaving me without care.

This is awful — I’m so sorry.