The science is really, really poorly done, but it's like people desperately WANT to believe in it. We've spoken before about how deeply people wish to believe their health is in their own hands, but this goes to a deeper and weirder place, IMO. And the more we push, the more the True Believers seem convinced that they must be right, because you need to believe that to put yourself in a "fighting mood".
So then also they're genuinely hurting people with this. I've just gone through the Forward ME responses to GET and there were a few questions that have probed deeper and... the effects of GET are really, really grim. I mean, I knew they were grim, but GRIM.
Actually, somehow, worse than I thought. I'm not trying to toss out a 'teaser', the results aren't released yet, but I'm trying to help you guys conceptualize how I'm feeling as I'm trying to tell these people that:
- The science is genuinely bad
- Your actions will lead to bad things for patients
- You're telling everyone we're violent and not to be trusted
- You're characterizing a very powerful man and his powerful friends as heroic underdogs
- You're casting disabled people in particular as The Shadowy & Powerful Enemy
Ok, yeah, seems like about as good an idea as that NPR pain article.
I'll reiterate that even though my blood is on fire that attacking these people (as opposed to their work) is bad news. Most people are convinced by patience and science and reasonableness, if they're to be convinced at all.