Special Report - Online activists are silencing us, scientists say Reuters March 2019

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Sly Saint, Mar 13, 2019.

  1. Michelle

    Michelle Senior Member (Voting Rights)

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    @dave30th quoted the email that Michael Sharpe sent to the editors of STAT News to get them to retract @julierehmeyer (is she not a member here?)'s 2016 piece detailing the problems with the PACE study.

    If I remember correctly, it was Peter White who contacted University of Manchester to complain about Keith Geraghty (I was sure he was a member but the autofill isn't showing up various iterations of his name that I've tried) but don't have the link at hand.
     
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  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    Yes, that was my memory too. So Sharpe's reply doesn't contradict that information as complaining to editors about an article would generally not be seen as being the same as complaining to a researchers institution.
     
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  3. Michelle

    Michelle Senior Member (Voting Rights)

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    But he did try to get STAT to retract Julie Rehmeyer's paper.
     
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  4. Paul Watton

    Paul Watton Established Member (Voting Rights)

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    Says also, the man who (allegedly) lodged complaints with the employer / host University of an academic, who dared to criticise the PACE trial.
    Says also, the man who (allegedly) asserts that it is a conflict of interest to suffer from the same illness that you're researching.

    https://me-pedia.org/wiki/Intimidation_and_bullying_of_PACE_trial_critics#Keith_Geraghty
     
  5. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    In The Times too:


    [​IMG]
    simon wessely
    Daily update ⋅ Trolls force Oxford expert to stop research into ME
    The Times
    Sir Simon Wessely, of King's College London, said that he had also stopped researching CFS treatment after “relentless internet stalking”. One tweet ...
     
  6. Roy S

    Roy S Senior Member (Voting Rights)

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  7. Roy S

    Roy S Senior Member (Voting Rights)

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  8. Alvin

    Alvin Senior Member (Voting Rights)

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  9. chrisb

    chrisb Senior Member (Voting Rights)

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    One has to wonder what is the duty of disclosure of a supposedly serious news outlet. One sometimes sees reports in which it is stated that the report is produced in conjunction with others and providing reference to further extrinsic material. That seems absolutely legitimate. In this case there seem to be only two possibilities. Either the report was produced to coincide with publication of the Sharpe et al correspondence, in which case readers should have been informed. Or it wasn't, in which case there should be a caveat printed explaining the unfortunate co-incidence.

    There must also be some contractual duty to those outlets which have, presumably in good faith, produced syndicated copies of the article. Were they all made fully aware of the circumstances and that they might be made to appear to be part of an orchestrated campaign?
     
  10. hinterland

    hinterland Senior Member (Voting Rights)

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    I was wondering if it would be worth lodging a complaint with the Independent Press Standards Organisation, this is the new regulatory body that replaced the Press Complaints Commission in 2014. However, apparently they only regulate press organisations that are members, and, inconveniently, I don't see Reuters listed. I'm just noting this in case anyone else had the same thought.

    I've no idea what the complaints procedure is for Reuters then, if there is any external regulator we can appeal to or an internal process only.
     
  11. Cheshire

    Cheshire Moderator Staff Member

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  12. Stewart

    Stewart Senior Member (Voting Rights)

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    Sigh.

    Can anyone who's a Times subscriber tell me if there's anything new in this piece? And are they allowing comments?
     
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  13. Andy

    Andy Committee Member

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    I didn't read the original article but this version seems very short. And comments are accepted, subject to moderation. Free sign up to the Times allows 2 articles a week to be viewed and comments to be left.
     
  14. SallyC

    SallyC Senior Member (Voting Rights)

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    I wrote an email complaint about the last awful Reuters article Kate Kelland wrote, (the Cochrane one), citing that it betrayed their own Trust Principles and received no acknowledgement whatsoever.

    https://www.thomsonreuters.com/en/about-us/trust-principles.html
     
  15. Trish

    Trish Moderator Staff Member

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    From The Times article (much shorter than the Reuters one)
    Some good, some bad.
    They get the definition of CFS wrong:

    The good bit:
    Wessely quote:
    Actually, I don't think it's too bad - the two tweets mentioned are hardly severe harassment. I think readers will wonder on the basis of this article what all the fuss is about if that's the worst they have experienced.
     
  16. chrisb

    chrisb Senior Member (Voting Rights)

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    www.customercare.org/thomson-reuters-complaints

    This link seems to suggest that they recognise a problem in dealing with initial complaints and have in place a mechanism for dealing with it. Whether it works is another matter.
     
  17. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Perhaps it would be a good idea to encourage jounalists/editors to watch Voices from the Shadows.
     
  18. Trish

    Trish Moderator Staff Member

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    I've posted a response to the Times article. Whether it will pass their moderation I have no idea. Here it is, for the record:
     
  19. JohnTheJack

    JohnTheJack Moderator Staff Member

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    Excellent comment, Trish, thanks.
     
  20. JohnTheJack

    JohnTheJack Moderator Staff Member

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    Anyone able to replicate this finding?

    I have been to the site and done a search. I get over 100 studies returned (many from China), but I don't see how to limit the search terms to trials started in any one year.

    https://clinicaltrials.gov/ct2/home
     
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