I did want to like this, due to the subject matter, and I respect that Murdoch is writing from his experience of ME and wants to shed light on the illness. But this just isn’t a successful novel. In an interview I read he mentions not having read fiction in many years, to which I can’t help but wonder… what makes you qualified to write it? This is incredibly shaggy and poorly edited, meandering and rambling; if he weren’t famous for something else it wouldn’t have been published. The seemingly arbitrary shifts between present and past tense were especially annoying. The book is also way too long, which emphasizes the overwriting and lack of editing.
Mostly I was bewildered by the depiction of ME. I realize that the illness is a spectrum and that the Stephen character is less debilitated than I am. I know people in a similar position. So that’s fine. But Murdoch is not specific about the disease’s actual symptoms or how it manifests physically. Although Stephen can’t work, he lives a very active life in these pages; he has to rest frequently but that’s all (and this isn’t explored in detail). It’s very strange given Murdoch’s own experience of the illness. I expected more description of PEM in particular, even if the characters don’t have this terminology available to them. There is also a lot of language about just willing yourself to feel better, which I think the book understands is pernicious, but the character has such a vague conception of illness and disability (in fact, he says he isn’t disabled, despite the fact that he clearly is) that all this talk becomes muddled and can be a bit troubling.
Again, I understand that this comes from a good place, but I don’t think everyone needs to write a book to express themselves. Murdoch has written an excellent song about the experience of ME and has campaigned for ME patients in a much more direct and persuasive way than he can in this book. Obviously he has other motivations here too but the book isn’t… good… when you’re already a gifted songwriter and musician why not continue expressing yourself in that medium?
A very frustrating reading experience.