Stuart Murdoch (of Belle and Sebastian)

Discussion in 'General ME/CFS news' started by Indigophoton, May 12, 2018.

  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Several threads have been merged into this thread

    https://www.bbc.co.uk/news/amp/uk-scotland-44085954
     
    Last edited by a moderator: Oct 11, 2024
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    TheMindMapUK: Belle and Sebastian - Stuart Murdoch - Going Through The Emotions
    Just spotted this on Facebook. I have a problem downloading the article. Might be due to much traffic perhaps..


     
    Last edited by a moderator: Oct 11, 2024
  3. Trish

    Trish Moderator Staff Member

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    I think saying it's an article about how having ME affected his mental health is misleading. It sounds to me from the interview as if he has and always did have excellent mental health. What he talks about more is the affects of being ill on his view of himself, his place in the world, the constraints having a physical illness places on what he is able to do, and what he values and what he does to keep himself feeling good about himself and his life.
     
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  4. Kalliope

    Kalliope Senior Member (Voting Rights)

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    What a wise guy. I particularly liked this part:

    I figure now that it’s up to me to help when I can, to try to elucidate the position, and to be part of the search for a diagnosis and cure. It might be the most important thing I ever do.
     
  5. Tia

    Tia Senior Member (Voting Rights)

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    I love him! He seems like a really good person. I can really identify with the way he talks about Buddhism. Also, love his playlist... that Nina Simone song!

    My fav bit:

    What advice do you offer to friends when they are feeling overwhelmed?

    Sometimes when people are truly overwhelmed, I’m likely to tell them anything they want to hear. It’s not the best time to challenge them with Buddhist wisdom.

    When I come back from my class and my wife has just put the kids to bed and is knackered on the sofa and I try to tell her something I learned that night, she often says

    “Don’t give me the Bhudda..”

    I usually go get her a beer instead.
     
  6. Kalliope

    Kalliope Senior Member (Voting Rights)

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  7. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Has he chronic Fatigue or M.E....wish syndrome could at least be added to chronic Fatigue.....as we all know chronic Fatigue is not M.E. I'm not sure about this being a super idea.
     
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  8. Kalliope

    Kalliope Senior Member (Voting Rights)

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    I am not sure I understand. He has ME, hasn't he?

    In this recent interview with Murdoch, he says he got sick with ME/CFS in 1990.
     
  9. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Well I wish he would call it M.E then and not chronic Fatigue!!
     
  10. Kalliope

    Kalliope Senior Member (Voting Rights)

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    I still don't understand, I'm afraid. Could you please guide me to where he calls ME chronic fatigue?
     
  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Oh, it's in the video! Sorry, I didn't catch it first time I saw it. As I understood it he talks about chronic fatigue as a symptom, and ME as the name of the disease, so no referral to the disease as chronic fatigue. :)

    Edit to add: And on wikipedia it says he came down with Myalgic Encephalomyelitis.
    https://en.wikipedia.org/wiki/Stuart_Murdoch_(musician)
     
  12. Adrian

    Adrian Administrator Staff Member

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    When all the doctors keep saying chronic fatigue then its easy to slip into that language.
     
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  13. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Maybe....I know I'm allergic to the term chronic fatigue...and no way wud I ever use it as it's the most feeble description of such a horrible illness.
     
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  14. Joh

    Joh Senior Member (Voting Rights)

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  15. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Oh, he does say "chronic fatigue" not "chronic fatigue syndrome", and towards the end he talks about exercise.. :(
     
  16. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    Ugh.

    Don't know this guy from Adam, can't be bothered to google his name, but I take it he's some sort of celebrity as he was on CNN and mentioned his 'band'.

    He started the first video apologizing for not being clear on his CNN interview.

    Being a celebrity and an OMF Ambassador, he has the potential to have a big impact. Based on those 2 videos, I'm not sure if he'll have a positive impact. And I wonder what the CNN interview will be like if he's already pre-apologizing. Gulp.

    OMF needs to have him work with a communications consultant to get his messaging and language on point. And no more interviews or videos until.
     
  17. NelliePledge

    NelliePledge Moderator Staff Member

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    Yes if people are going to be ambassadors for an organisation and advocate for fellow patients the organisation should give them a thorough briefing on the politics. Just because you have an illness doesn’t mean you have a detailed grasp of anything other than your own experience.
     
  18. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    I didn't have a good feeling about him from day 1!!!
     
  19. NelliePledge

    NelliePledge Moderator Staff Member

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    I don’t have a bad feeling I just think being an advocate is different from being a musician and like any role you have to learn how to do it. The OMF should be facilitating this. There are people he could learn from like @Tom Kindlon and @Emsho
     
  20. MEMarge

    MEMarge Senior Member (Voting Rights)

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    I'm pleased that he is speaking out.

    Yes, it would be better if he didn't conflate CF and CFS, but let's give him a chance.
     

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