Submissions on Draft Scope for the NICE Guideline Review, 2018

[James]

Agree that Malaise is a poor descriptor for a general exacerbation of any and all symptoms but the word Lassitude was once in common use describing similar physical states experienced by multiple sclerosis patients. An adjustment in the universal translator has relegated a word that describes feeling a little peaky into a less frequently used descriptor, similar changes in vocabulary will be a future requirement if some understanding of the lived experience is going to be conveyed.

 

[Barry]

I see the thread has been posted on S4ME Facebook and my Avatar is rather prominent on the post. I hope if NICE are monitoring Facebook they’re not scared by my evil minion. I picked it for the colour and wild hair not the teeth

Oh ... I always thought it was you in the midst of a GET session ... gently explaining to your therapist the error of their ways