ME genome project. There was the human genome project, a big success. Now there is the ME genome project, hopefully also a big success. That's MEGP or MGP depending on how we abbreviate ME.
From the other thread: So how about: Decode ME/CFS The WIGWAM Study: Worldwide Investigation of Genome-Wide Association in ME/CFS
Study of Heritable Illness Traits (SHIT) Genome Report On Associations Newly found (GROAN) Heritable pathoLogy Project (HeLP) Disclaimer: these suggestions are meant as a joke. Since the BPS researchers seem to be fond of acronyms like PACE, SMILE etc.... I wanted to see if I could have some fun coming up with my own. If this is inappropriate for this thread, then it could be made into a new thread?
I like @Sasha Decode ME/CFS I also agree with @Simon M that we should have DNA somewhere prominent ...perhaps as a descriptor associated with the name E.g. Decode ME/CFS The biggest DNA survey of ME/CFS patients You can do variants on this using words like “discovery” “search” etc.
GenoME? I'd quite like not to have CFS in whatever the name is, even if it has to go in the strap line to clarify for newer patients. Given the number of ME groups on social media, plus all the Facebook-based welfare advice groups who'd likely be willing to signpost it for their clients, plus all the healthy friends of patients who may also know other people with ME, I'm quite optimistic about the ability to reach good numbers of people. Reach isn't the same as enrolment, of course, but if this project gained funding it would be a big story with good Press potential. I think it would excite and motivate the wider community, and many would want to take part.
I came up with this before I realized that the "S" in GWAS stands for "Study," not "Sequencing." "SEQUENCE ME" Darn. I even had t-shirts made .
GnoME = Genome ME GeneSeME = Gene Sequence Has anyone tried this? http://acronymcreator.net/ I can't get it to work, but it might be useful.
Echoing my comment on the the other thread (about being fed up with annoying acronyms like MEGA, PACE etc.) and taking @Simon M ‘s comments into consideration (about the need to make it clearer to more people what it’s about) I would suggest something like The ME/CFS Genome Study. Or perhaps The Big ME/CFS Genome Study.
I like the idea of something clear and factually accurate as you suggest, Robert. But we also need a shorthand way of referring to it, I think. I'd hate to have to type out the full title every time I mention it. I think I'd end up referring to your suggestions as MEGS, which seems OK to me.