Suggest a name for Chris Ponting's ME GWAS project!

From the other thread:

Simon M said:
Good point about acronyms.

But bear in mind that this project might need to recruit 20,000 people (more, since some won't meet the selection criteria). So we will be going well beyond the current ME online community, and reaching people who don't know much about research. I think ME GWAS won't mean anything to many pwME reading an article about the study in their local paper or hearing it on the radio. Maybe something with DNA or genetic in the title, something that most will recognise.

Along with ME, maybe: many people, esp outside the UK, won't recognise "ME" as they will have been told they have CFS. Even most US researchers (sadly) use CFS not ME or mecfs.

But name ideas are not my forte.
Click to expand...

So how about:
  • Decode ME/CFS
  • The WIGWAM Study: Worldwide Investigation of Genome-Wide Association in ME/CFS
 
Study of Heritable Illness Traits (SHIT)
Genome Report On Associations Newly found (GROAN)
Heritable pathoLogy Project (HeLP)

Disclaimer: these suggestions are meant as a joke. Since the BPS researchers seem to be fond of acronyms like PACE, SMILE etc.... I wanted to see if I could have some fun coming up with my own. If this is inappropriate for this thread, then it could be made into a new thread?
 
Last edited:
Sarah94 said:
Disclaimer: these suggestions are meant as a joke. Since the BPS researchers seem to be fond of acronyms like PACE, SMILE etc.... I wanted to see if I could have some fun coming up with my own. If this is inappropriate for this thread, then it could be made into a new thread?

Study of Heritable Inherited Traits (SHIT)
Genome Report On Associations Newly found (GROAN)
Click to expand...
If we're doing that you could just add S (for 'study of') to my suggestion above.
 
GenoME?

I'd quite like not to have CFS in whatever the name is, even if it has to go in the strap line to clarify for newer patients.

Given the number of ME groups on social media, plus all the Facebook-based welfare advice groups who'd likely be willing to signpost it for their clients, plus all the healthy friends of patients who may also know other people with ME, I'm quite optimistic about the ability to reach good numbers of people.

Reach isn't the same as enrolment, of course, but if this project gained funding it would be a big story with good Press potential. I think it would excite and motivate the wider community, and many would want to take part.
 
I like the idea of something clear and factually accurate as you suggest, Robert. But we also need a shorthand way of referring to it, I think. I'd hate to have to type out the full title every time I mention it. I think I'd end up referring to your suggestions as MEGS, which seems OK to me.
 
You must log in or register to reply here.
Back
Top Bottom