The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

[Sean]

Ahhh, the fallacy of choice.

Next DWP will ask "Why don't you use the tools that have been provided to help you improve your function?"

That is exactly how this is going to happen. This crap will be abused to the max against us.

'Don't you want to get better? If you are not even prepared to try then sorry but no support for you, lazy peasant scum.'​

That kind of cruel blackmail shit.

This sort of endless form filling is exactly the cognitive busywork that can make clinics inaccessible for pwME.

It’s basically homework for someone whose already struggling to have the energy to survive.

One fairly obvious thing is that I have days where - due to PEM or if we want to call it exhaustion - on certain days the same very low-demand 'activities' (toilet, sitting up, lying down being awake, tea etc) produce completely different measures compared to other days.

This.

 

[Peter T]

Published evaluation of the outcomes of the British specialist services, though predating the new NICE guidelines, found a decrease in hours worked and an increase in benefits claimed following treatment from these services. This suggests they failed as services providing rehabilitation, but these changes could be regarded as a positive outcome for people with an ongoing condition. It might suggest that services aimed at supporting adaptation to a disabling condition would be more appropriate than rehab based services, suggesting this assessment tool kit is looking at completely the wrong things.

 

[Cinders66]

So this app , is for those who unlike People with any other potentially serious illness, are not provided with nhs care and for that privilege they want to charge a subscription fee for accessing the toolkit.

 

[Trish]

So this app , is for those who unlike People with any other potentially serious illness, are not provided with nhs care and for that privilege they want to charge a subscription fee for accessing the toolkit.

Yep, and all the app provides is a bunch of useless questionnaires and links to the MEA leaflets that you can get directly from the MEA. It's pointless.

 

[MrMagoo]

How much does it cost?

I would actually like to see an ally (e.g. someone who cares for a pwME) work through this mountain and quantify how long it took them, how long it would have taken the pwME and how useless it is.
It would make a good reel.