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The ME Patient Foundation

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Jun 23, 2019.

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Page 3 of 3
  1. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,281
    Location:
    UK West Midlands
    Maybe not directly relevant but my experience organising Millions Missing locally gave me an insight into the organising and bureaucracy involved once you start to get beyond informal advocacy. And that was only for a one day event. I found the demands cognitively and physically were equivalent to when I was working in paid employment. And it’s much more challenging dealing with bureaucracy than dealing with colleagues.
     
    NelliePledge, Sep 7, 2019
    #41
    MyalgicE, Joh, Annamaria and 9 others like this.
  2. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Best wishes to everyone trying to improve things. I'm sure a lot of people are doing all sorts of work behind the scenes that doesn't really get the appreciation it deserves. Sorry this didn't work out for those involved.
     
    Last edited: Sep 8, 2019
    Esther12, Sep 7, 2019
    #42
    MyalgicE, Joh, It's M.E. Linda and 8 others like this.
  3. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    3,341
    Dx Revision Watch, Nov 29, 2019
    #43
    MEMarge likes this.
  4. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    3,341
    I understand from Claudia that the resolution process with the Charity Commission has been completed.

    There is nothing that I could see on the Charity Commission site's listing for this charity that it has been wound up and as far as I am aware, Emma and her husband (a co-trustee/director) have issued no further statements.

    This fundraising page also remains online: https://www.totalgiving.co.uk/charity/the-me-patient-foundation
     
    Dx Revision Watch, Nov 29, 2019
    #44
    It's M.E. Linda likes this.
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