This thread has been created by merging threads and copying posts form UK news
S4ME and the UK Covid Inquiry
I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has.
As those of us in the UK are aware the Covid Inquiry is just getting underway. Its brief has been interpreted by the Chair to be very broad.
It seems to me that preparedness for Covid and (to those of us who know about ME) the inevitable Long Covid was massively diminished by 30 years of bad research into ME and the folly of the GET-CBT approach, a failing that is underlined and endorsed by the recent NICE guidelines.
It should, and I think if put to the Inquiry may very well be, considered by it. If so, this would be a great opportunity to have an official record of the appalling history of ME.
Has it been discussed whether S4ME should apply to be a core participant for the appropriate module? I think we should, and given the broad parameters and powers of the Inquiry to grant it, I think there is a good chance of being successful. The fact that we were involved officially with the NICE guidelines could play in our favour.
Even if we do not succeed with being made a core participant, we should, I think, definitely make a submission to 'Every Story Matters' and encourage patients who are well enough to do so.
Inquiry FAQs
https://covid19.public-inquiry.uk/frequently-asked-questions/
Core Participant Protocol
(PDF) https://covid19.public-inquiry.uk/wp-content/uploads/2023/05/Core-Participant-Protocol.docx-1.pdf
S4ME and the UK Covid Inquiry
I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has.
As those of us in the UK are aware the Covid Inquiry is just getting underway. Its brief has been interpreted by the Chair to be very broad.
It seems to me that preparedness for Covid and (to those of us who know about ME) the inevitable Long Covid was massively diminished by 30 years of bad research into ME and the folly of the GET-CBT approach, a failing that is underlined and endorsed by the recent NICE guidelines.
It should, and I think if put to the Inquiry may very well be, considered by it. If so, this would be a great opportunity to have an official record of the appalling history of ME.
Has it been discussed whether S4ME should apply to be a core participant for the appropriate module? I think we should, and given the broad parameters and powers of the Inquiry to grant it, I think there is a good chance of being successful. The fact that we were involved officially with the NICE guidelines could play in our favour.
Even if we do not succeed with being made a core participant, we should, I think, definitely make a submission to 'Every Story Matters' and encourage patients who are well enough to do so.
Inquiry FAQs
https://covid19.public-inquiry.uk/frequently-asked-questions/
Core Participant Protocol
(PDF) https://covid19.public-inquiry.uk/wp-content/uploads/2023/05/Core-Participant-Protocol.docx-1.pdf
Last edited by a moderator: