Trial By Error: Who Has the School Study Documents?

I agree, but the legislation and Statutory guidance says otherwise, and they often break all those rules.
Thus any 'research' which can 'encourage' improved attendance, etc will be welcome 'cos it lets them off the hook- so they will argue.
I am just looking at the 2016 Bath Commissioning document with dismay........
I went through the Suffolk new Alternative Provision Consultation in much the same way.
Where do the sick chronically ill kids fit in?
 
Tuller's blogs related to Esther Crawley's work often make my head spin.

"I have previously sent a Freedom of Information request about this study to Bristol University. I was informed that the university does not hold the documents of interest because the study was conducted out of the Bath clinical service. That is why I am now appealing to you."

“We do not hold information in relation to your request. Please redirect your request to the University of Bristol.”

This isn't as crazy as some of the LP SMILE trial stuff, where 'prospective' registration occurred after they'd used information from participants in the trial to change outcomes, but I'm still left feeling that I must be misunderstanding something.
 
Suffolkres said:
I agree, but the legislation and Statutory guidance says otherwise, and they often break all those rules.
Thus any 'research' which can 'encourage' improved attendance, etc will be welcome 'cos it lets them off the hook- so they will argue.
I am just looking at the 2016 Bath Commissioning document with dismay........
I went through the Suffolk new Alternative Provision Consultation in much the same way.
Where do the sick chronically ill kids fit in?
Click to expand...
They don' t.
Hence current interest in " off rolling"

Virtual education should be state funded and complement mainstream.it isn' t and that' s a big part of the issue.

Even if a child could make it into school for a single subject, if able, that could be augmented / reinforced via virtual ed.
It also could be cheaper than home tutors.

Just need to find a not for profit model.
 
dave30th said:
thanks for the various suggestions. So which would be the local education agency to which I would send a freedom of information request?
Click to expand...

Trying to identify the schools involved from the article is likely to be problematic. Geographically all we can say is that the schools are within the catchment of the Bath CFS/ME service that covers a number of LEAs (Local Edcation Authorities).

The most immediate is Bath and NE Somerset Council (see https://www.bathnes.gov.uk/services/schools-colleges-and-learning) which has some 20 secondary schools (see http://schoolswebdirectory.co.uk/leasearch.php?lea=Bath and NE Somerset ) but if the schools involved are academies contacting the Council rather than the schools may not help.

So far I have only been able to identify one all girls [state] school in Bath itself (see http://www.hayesfield.com/ ) which is an academy and is part of a multi school trust (see http://www.batheducationtrust.com/index.php ), so it is not clear if it is part of the study whether an FOI request should be sent to the Headteacher or to the Bath Education Trust.

The published paper thanks one Larry Cunningham ("who helped us work with the schools in this project"), but so far the only Larry Cunningham I have found with links to the area co wrote a book of walks.
 
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dave30th said:
thanks for the various suggestions. So which would be the local education agency to which I would send a freedom of information request?
Click to expand...

Not sure as services have changed and been restructured since 2010/2011.
I have contacted the parent Carer group who span this time frame initially.

Softly, softly......
Don't want anyone closing ranks before we start!
I have asked for info both as an involved exprofessional and a coordinator (as well as a family carer).
I will do some more ground work and fishing first, then pass on to you what I find......

Will private message what I have asked for.
 
The net is closing, but no one seems to have been around....

Interestingly, this chap was in children's commissioning in 2015 and tasked to do a 'mini review' and related scoping exercise on "pushed out learners".
I have read his stuff - nothing about sick kids- just "others'????? but he said children with chronic long term medical needs were "scoped out" of his mini review, which turned out to be a rather major one!
He was very helpful......


Hi B
Thanks for your enquiry and earlier phone call.
I’ve made enquires with relevant teams but unfortunately no-one in current Bristol City Council staff was around and doing anything related to the study mentioned in 2011, and they are not aware of any archive records about this.
Chris Davies, Head of Alternative Learning advised that Jim Bowyer the Headteacher at Hospital Education – BHES may be able to advise. His email is jim.bowyer@bristol-schools.uk
Best wishes
Duncan
Duncan Fleming
Equalities and Community Cohesion Officer
Bristol City Council
Tel: 0117 3574828
Email: duncan.fleming@bristol.gov.uk
cid:image003.jpg@01D4B6FD.297BB020
 
Chap above mentioned EC..... I did not respond to that but kept it general.
http://bathneshealthandcare.nhs.uk/childrens/community-paediatric-service/
Having a little look here..
OM Gooddness, it's a privitised service Virgin Care......



https://www.bathnes.gov.uk/services...arers-educational/children-missing-educatio-4
Home » Services » Schools colleges and learning » Support parentscarers educational » Education for C&YP who cannot attend School because of medical health needs
Education for C&YP who cannot attend School because of medical health needs


Hospital Education and Reintegration Service
The Hospital Education and Reintegration Service (HERS) offers teaching and support/advice to children and young people who cannot attend school because of health medical needs. As of September 2018, this service is being provided in B&NES by Broadlands Academy (The Hive).

B&NES Policy Statement Ensuring a good education for children who cannot attend school because of health needs

If you would like any information, please email the EOTAS officer at eotas@bathnes.gov.uk T: 01225 394307

Schools, Colleges and Learning
Support for Parents/Carers (Educational)
Children Missing Education
Absence from School
Chaperones (Children in Entertainment)
Child Employment
Child Performance Licences
Compulsory School Age
Education for C&YP who cannot attend School because of medical health needs
Elective Home Education
Exclusion of Pupils
Holidays in Term Time
Penalty Notices
Private Tutors
School Attendance
Contact Us
Hospital Education and Reintegration Service,
Broadlands Academy,
St Francis Road,
Keynsham,
BS31 2DY

01225 394307
eotas@bathnes.gov.uk

 
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ehttps://modalitypartnership.nhs.uk/.../2011/december/me-cfs-cause-of-school-absence
NHS website - Study of chronic fatigue syndrome in children

Chronic fatigue syndrome could affect one in 100 pupils, BBC News reported.

The estimate is based on research that followed nearly 3,000 children at three secondary schools in Bath. It found that 28 pupils missed school due to chronic fatigue syndrome. The Daily Telegraph said that this means the condition could be 10 times more common than previously thought.

This research investigated whether school-based clinics could be used to identify children with chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME). The researchers assessed pupils who missed more than a fifth of school days each term and found that 28, around 1% of the schools’ population, had CFS. Only five of these children had been previously diagnosed. Children detected as having ME by the school clinics tended to be less severely affected than children who had been previously referred to health services.

The research highlights that CFS is a possible cause of unexplained school absence and that symptoms of fatigue should be followed up. While fatigue is a symptom of CFS, it can also be caused by other conditions such as mood disorders (for example depression) or sleep problems. Although the prevalence of CFS in these schoolchildren is higher than previously thought, further research is needed to see if these figures are representative of the whole country, as well as the Bath area.
 
Ta Suffolkres. Any reason to just summarise the e-mail rather than post it on a public forum? I don't know, but thought I'd check with you.
 
Sorry a bit slow today. Are you suggesting a summary rather than whole email?

I posted the email complete so DT ( and others), can see the public LEA officers tasked with our children's situation.
DT might need to issue an FOI at some point, but to whom?

I did summarise the telephone conversation as I could see little regard to sick children's needs in the documents issued in 2015 and 2016.
Duncan confirmed this to be the case as this group had been 'scoped out" of the debate and consultation at that time.

Just browsing this;
https://purehost.bath.ac.uk/ws/port...ronic_Fatigue_in_Childhood_Revision_clean.pdf
 
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Suffolkres said:
Are you suggesting a summary rather than whole email?
Click to expand...

Possibly - I just wasn't sure if there'd be any downside to posting the e-mail and his contact info on a public forum. I know a lot of those corporate e-mails include 'not to be republished' small print, but I don't really know what is seen as the done thing, so just thought I'd mention it for you to consider.
 
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