: TV casting call for people living with ME/CFS

I can see it being apple or discovery+ maybe. Sky is kind of a streamer now too.

 

BACME have confirmed they are not involved.

 

I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television at Electric Robin.

vinny.basra@electric-robin.co.uk

Hopefully they will take notice and pull back from the idea of including pwME in this series and consider working with a more medically appropriate patient group.

 

Ha ha my letter to the boss perhaps did the trick.... Just received this

Dear Sir/Madam,

We recognise that our initial outreach for runners with non-visible disabilities has caused some offence. For this, we would like to apologise as it was never our intention.

The series we are producing is an exploration into greater inclusion in sports, and with it the barriers faced by people living with disabilities. The editorial is still in its early planning phase and no decisions have been made in regard to the final content or health conditions featured. The ongoing outreach is a means of helping us arrive at an informed editorial approach and we will ensure all advice is taken onboard.

Should you wish to discuss this further, please do let me know and I would be happy to schedule some time for us to speak.

Please find attached an updated flyer should you wish to distribute to your community.

Best wishes,
Janet Chute

The flier does not include ME or CFS

 

WOW excellent update! Hooray!

 

I hope that it all now disappears re ME.

I have offered and the boss (Vinny) has asked Janet to follow up next week.

 

Ok please remember not to threaten their lives, you know how pwME are terrifying and abusive/s

 

I'd be nothing other than polite

 

Seriously, well done and I hope it’s a useful conversation.

 

This forum is amazing, looks like something catastrophic for public and professionals attitudes and devastating for a lot of sick people may have been stopped!