UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

[JellyBabyKid]

Tweet from Tessa Munt MP

https://twitter.com/user/status/1923349401835049009


Thank you @stephenctimms for meeting with #APPGME and #APPGLongCOVID and agreeing to my request to speak to @DHSCgovuk to fund research that would enable #pwME to get better, go to work, and come off benefits. Wins all round! #FundThePlan

 

[NelliePledge]

Good to get a meeting with the actual responsible minister in the current government. I think all the dealings since Sajid Javid moved on from Health Secretary have been at official level. I

I was a junior official a couple of decades ago in a team where we had a couple of meetings to brief Stephen Timms during his previous stint as a Minister. He struck me as a decent guy at the time. I am hopeful he will be able to see that the status quo is not acceptable.

 

[Chestnut tree]

The Canary has an article on the disability cuts. Apparently two MP’s who sit on the APPG for ME are in favor of the disability cuts.

https://www.thecanary.co/long-read/2025/04/01/dwp-cuts-me-cfs/

Have not read it

 

[OrganicChilli]

What happened to the meeting minutes of the most recent meeting? They used to be published a few day later.

 

[Dolphin]

ME Association:
The official minutes from the first joint ME and Long Covid APPG meeting are now available!

https://appgme.co.uk/meetings/minutes-for-appg-meeting-14-may/

Stephen Timms, Minister for Social Security and Disability, joined the first part of meeting which focused on the Government's proposed welfare reforms.

Attendees raised serious concerns regarding the impact the proposed reforms, citing evidence from the recent survey, developed by Long Covid Support, Action for ME, ThereforME, and ME Local Network.

Jo Platt MP, Chair of both APPG's also referenced her own lived experience when outlining these concerns.

Read more here: https://meassociation.org.uk/8kfm

Thank you to those who attended the meeting, and we will share an update soon regarding future meetings.

#pwME #MECFS #MyalgicEncephalomyelitis #APPGonME #APPGonLongCovid

 

[Eleanor]

Line that jumped out at me on skimming the minutes: Danny Altmann "highlighted that there has been no Long Covid research funding of any significance from the NIHR since 2021."

 

[V.R.T.]

ME Association:
The official minutes from the first joint ME and Long Covid APPG meeting are now available!

https://appgme.co.uk/meetings/minutes-for-appg-meeting-14-may/

Stephen Timms, Minister for Social Security and Disability, joined the first part of meeting which focused on the Government's proposed welfare reforms.

Attendees raised serious concerns regarding the impact the proposed reforms, citing evidence from the recent survey, developed by Long Covid Support, Action for ME, ThereforME, and ME Local Network.

Jo Platt MP, Chair of both APPG's also referenced her own lived experience when outlining these concerns.

Read more here: https://meassociation.org.uk/8kfm

Thank you to those who attended the meeting, and we will share an update soon regarding future meetings.

#pwME #MECFS #MyalgicEncephalomyelitis #APPGonME #APPGonLongCovid

Just watched Chris Ponting's presentation. He seemed genuinely angry, and quite right too. A very good speech in my opinion and always very glad to have him in our corner.

 

[Trish]

Just watched Chris Ponting's presentation. He seemed genuinely angry, and quite right too. A very good speech in my opinion and always very glad to have him in our corner.

I've just watched it too. He's really good. Thanks @Chris Ponting.