1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 11th November 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

Discussion in 'General ME/CFS news' started by Andy, Oct 21, 2019.

Tags:
Page 6 of 9
  1. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    516
    "Altered calcium flux". Let's keep that in mind.
     
    mariovitali, Mar 11, 2020
    #101
    Kitty, Amw66 and ScottTriGuy like this.
  2. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #102
    Kitty, Hutan, Trish and 4 others like this.
  3. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    516
    mariovitali, Mar 11, 2020
    #103
    Kitty, Mithriel, Amw66 and 7 others like this.
  4. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #104
    Kitty, Hutan, Trish and 3 others like this.
  5. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #105
    janice, Kitty, Trish and 1 other person like this.
  6. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #106
    MEMarge, obeat, Kitty and 12 others like this.
  7. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #107
    Kitty, Hutan, Trish and 3 others like this.
  8. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #108
    Kitty, janice, Hutan and 3 others like this.
  9. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #109
    Kitty, Hutan, Trish and 5 others like this.
  10. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

    Messages:
    2,184
    Lower or higher ESR?
     
    Jaybee00, Mar 11, 2020
    #110
    Dolphin and Hutan like this.
  11. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #111
    Kitty, Hutan, Michelle and 3 others like this.
  12. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #112
    Kitty, janice, ScottTriGuy and 3 others like this.
  13. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    Andy, Mar 11, 2020
    #113
    MEMarge, Kitty, janice and 7 others like this.
  14. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,801
    Thanks a million for sharing all the tweets, @Andy. Much appreciated :hug:
     
    mango, Mar 11, 2020
    #114
    MEMarge, Kitty, Gecko and 15 others like this.
  15. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
    Hampshire, UK
    No problems, you are welcome. :)
     
    Andy, Mar 11, 2020
    #115
    MEMarge, Kitty, Gecko and 16 others like this.
  16. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    Creation of evidence across the diff domains to influence clinical practice and treatments is critical....

    No. We've had enough "creation" of evidence thank you. Finding evidence is an entirely different matter. Now, can we focus on looking for it please Prof H?
     
    Invisible Woman, Mar 11, 2020
    #116
    Sly Saint, janice, Hutan and 3 others like this.
  17. wastwater

    wastwater Senior Member (Voting Rights)

    Messages:
    358
    Was it revealed what was in the blood then or is that still to come later on
     
    wastwater, Mar 11, 2020
    #117
    mariovitali, janice, Hutan and 4 others like this.
  18. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,563
    Location:
    UK
    One of the things she is suggesting (I think) is that cohorts with fatigue should be used in comparison to PwME and has pointed out various different sources of data including twin study data. One thing that was being discussed is the notion that if you look at fatigue in general and then look at different bio markers with different diseases can you pick out what could be fatigue mechanism but also can you pick out what is different and hence may be core to ME.
     
    Adrian, Mar 11, 2020
    #118
    MEMarge, JemPD, Kitty and 10 others like this.
  19. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    The issue I have with that is the assumption all fatigue is the same. I don't believe that's the case. We might not even be comparing apples with oranges, but with a veg instead of another fruit.

    Then there's the question of whether it makes a difference whether or not fatigue is a primary or secondary symptom.

    Then how do you quantify it objectively and does that matter?

    Before more time and money is spend on fatigue I would rather they went away and actually worked out exactly and precisely what fatigue is and how to measure it objectively. Preferably using someone else's research funds.

    Edit - clarity
     
    Invisible Woman, Mar 11, 2020
    #119
    MEMarge, Chezboo, Kitty and 5 others like this.
  20. Natalie

    Natalie Senior Member (Voting Rights)

    Messages:
    114
    I've just put this on the Dialogues thread, but since the video was mentioned here yesterday, here it is....
    www.dialogues-mecfs.co.uk Following the first screening of 'Understanding Post-exertional Malaise in ME/CFS' yesterday at the CMRC conference in Bristol, the new 'Dialogues for a Neglected Illness' project website is now live. The project now includes the last video finished, 'An Introduction to ME/CFS', as well as two new PEM videos (one longer and one brief) and two GET videos released earlier.
     
    Natalie, Mar 11, 2020
    #120
    MEMarge, Dolphin, Kitty and 15 others like this.
Page 6 of 9

Share This Page