UK CMRC 2018 Conference held September 19 & 20 at Bristol

Just seen this in the Forward ME group minutes released today:

minutes said:
Clare Ogden made an announcement about this year’s CMRC Conference which would be more open to patients than in the past. Dr Charles Shepherd stressed that CMRC was much more “patient friendly” now. Chris Ponting was a welcome addition; patients would be welcome at the dinner, which had not been the case in the past.
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:thumbup:
 
The full programme for this year’s UK CFS/M.E. Research Collaborative conference has now been announced.

Conference speakers already confirmed include:

• Prof Cathie Sudlow, UK Biobank Chief Scientist, on big health data and open science
• Frances Williams, Kings College London, on expanding stakeholders in ME/CFS research
• Dr Derya Unutmaz, Jackson Laboratory for Genomic Medicine, on deciphering interactions between the microbiome and human immune system
• Prof Alain Moreau, University of Montreal, on identification of post-exertional dysregulated circulating microRNAs in ME/CFS pathogenesis

For the full programme, abstract submission form, details of student bursaries offered by the ME Association, and a link to delegate registration, visit www.actionforme.org.uk/CMRC
The deadline for submitting abstracts is 5pm on Friday 13 July and oral presentations will be selected following peer-review. Information on how to submit abstracts can be found at the link above.
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Code: 
https://www.facebook.com/actionforme/posts/10156478076163209
 
Hmmm. Compared to my response to the iime one, still looks like lots of spaces filled with stuff outside ME & CFS biomedical research. And psychiatrist carmine pariante has two slots one on inflammation connecting brain and body, his specialism is in inflammation in depression and stress I think, his 2012 research still going on it looks like, otherwise thers just the what I call the FND MRC study, but Neil Harrison's part
I personally see far less connection with IBS and ME than ms or sjogrens, the common pathway talk by miss someone from the NHS risks trivialising.
I saw mind brain link, a Kings dr, Activity workshop , an FND study, (not called that). IBS, big data (again). Perhaps I have unhelpful cognitive bias regarding those words and our history. When the other tbc blanks are announced it might look more science heavy.
Good to see uk biobank reps and MEA severe ME researchers there, both first time. The lack of science probably reflects the lack of uk activity.

I NOTE it's called CMRC 5 years on (convenient to rebrand in 2012) & that it's " time to transform " research ,which irritates me as if it wasn't before, convenient again for MRC.
 
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Jonathan Edwards said:
This looks like a very good line up to me. I might even go.
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Please do. It would be good to have your feedback.

There seem to be lots of gaps still, and some of the listed presenters I have no idea whether they are BPS or OK.

Can anyone enlighten us on:
- Prof Trepel, Trinity College, Dublin
- Miss Rachel French, Durham and Darlington NHS
- Prof Frances Williams, Kings College, London.
- Dr Sue Pemberton, Yorkshire Fatigue Clinic
- Jackie Cliff, University of Edinburgh
 
  • Looks like miss Rachel french has expertise in Gastroenterology, probably a surgeon, I am surprised she has expertise in FM & ME

  • Professor Frances Williams Campus Dean St Thomas'
    Professor of Genomic Epidemiology

    Start date at Kings: 1/10/2007

    DepartmentResearch interests
    Genetic and omic epidemiology of chronic pain syndromes, in particular intervertebral disc degeneration as a cause of back pain; and age-related hearing impairmen

    Who has done this paper:

    Metabolomic markers of fatigue - Research Portal, King's College, London](https://kclpure.kcl.ac.uk/portal/en...ue(e34e9069-09ec-4ff4-bc67-549a81fcec11).html)

  • Prof Trefel is either a neuro scienctist or health economist. I don't know if he has any special connection to our field.
  • Sue pemberton is private OT in Leeds who runs a CFS service , along with the immunologist who was discharged from the Leeds NHS CFS service and replaced with a psychiatrist I think.
 
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Trish said:
- Miss Rachel French, Durham and Darlington NHS
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I looked around a little and found nothing related to ME/CFS. She appears to be involved in IBS research https://www.contactme-ibs.co.uk/

My guess is that as consequence of interest in IBS she has contact with patients that fit some diagnostic criteria for ME/CFS.

Trish said:
Prof Trepel, Trinity College, Dublin
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He is Ireland's representative in EUROMENE https://www.s4me.info/threads/trini...derstanding-of-chronic-fatigue-syndrome.3267/

All considered this looks pretty good.
 
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