UK CMRC 2018 Conference held September 19 & 20 at Bristol

Just seen this in the Forward ME group minutes released today:

 

Code:

https://www.facebook.com/actionforme/posts/10156478076163209

 

Actually looks pretty good I think?

 

Hmmm. Compared to my response to the iime one, still looks like lots of spaces filled with stuff outside ME & CFS biomedical research. And psychiatrist carmine pariante has two slots one on inflammation connecting brain and body, his specialism is in inflammation in depression and stress I think, his 2012 research still going on it looks like, otherwise thers just the what I call the FND MRC study, but Neil Harrison's part
I personally see far less connection with IBS and ME than ms or sjogrens, the common pathway talk by miss someone from the NHS risks trivialising.
I saw mind brain link, a Kings dr, Activity workshop , an FND study, (not called that). IBS, big data (again). Perhaps I have unhelpful cognitive bias regarding those words and our history. When the other tbc blanks are announced it might look more science heavy.
Good to see uk biobank reps and MEA severe ME researchers there, both first time. The lack of science probably reflects the lack of uk activity.

I NOTE it's called CMRC 5 years on (convenient to rebrand in 2012) & that it's " time to transform " research ,which irritates me as if it wasn't before, convenient again for MRC.

 

This looks like a very good line up to me. I might even go.

 

• Looks like miss Rachel french has expertise in Gastroenterology, probably a surgeon, I am surprised she has expertise in FM & ME
• 
  Professor Frances Williams Campus Dean St Thomas'
  Professor of Genomic Epidemiology
  
  Start date at Kings: 1/10/2007
  
  Department
  • Twin Research & Genetic Epidemiology
  Research interests
  Genetic and omic epidemiology of chronic pain syndromes, in particular intervertebral disc degeneration as a cause of back pain; and age-related hearing impairmen
  
  Who has done this paper:
  
  Metabolomic markers of fatigue - Research Portal, King's College, London](https://kclpure.kcl.ac.uk/portal/en...ue(e34e9069-09ec-4ff4-bc67-549a81fcec11).html)
• 
  
• Prof Trefel is either a neuro scienctist or health economist. I don't know if he has any special connection to our field.
• Sue pemberton is private OT in Leeds who runs a CFS service , along with the immunologist who was discharged from the Leeds NHS CFS service and replaced with a psychiatrist I think.

 

I couldn't find my way to the full programme. Has anyone got a direct link?

 

The only Jackie Cliff I know and the only one on the internet I can find is at the London School of Hygiene.

The programme is at https://www.actionforme.org.uk/uploads/images/2018/06/2018_CMRC_programme_26.06_V2.pdf

 

I fear that this one will be all about defending business interests

 

Perhaps, we might hope, and as a colleague was once introduced at an Italian conference I spoke at:

'L'agnello sacrificale'?

 

I see no butcher though. Someone that would go over the last Wilshire et al PACE paper.

 

Well, there is a rumour that patients are allowed in the audience this time!

 

I looked around a little and found nothing related to ME/CFS. She appears to be involved in IBS research https://www.contactme-ibs.co.uk/

My guess is that as consequence of interest in IBS she has contact with patients that fit some diagnostic criteria for ME/CFS.

He is Ireland's representative in EUROMENE https://www.s4me.info/threads/trini...derstanding-of-chronic-fatigue-syndrome.3267/

All considered this looks pretty good.

 

I would put her it the better/top quartile of non-doctors that have worked in the NHS CFS-ME clinics.

 

No, Dr. Montoya arrives in Dublin on 15th and
leaves for USA on Tuesday 18th, the day after our conference.

 

Wellcome to S4ME.

 

Thank you!