UK: Dr Sarah Myhill

Arnie Pye

Arnie Pye

Senior Member (Voting Rights)






Dr Sarah Myhill is one of the leading doctors to stand up against the prevailing orthodoxy that ME is ‘all in the patients’ head’. She has recently demanded a public inquiry into the shameful and inadequate treatment of ME patients in the UK, and that the authors of the flawed PACE trial are held to account for their malign impact into the lives of hundreds of thousands of vulnerable, ill sufferers. Was this advocacy for an “undeserving” patient group which made Dr Myhill the target of GMC ire? And is this the best use of the time and resources of the GMC when the medical profession in the UK is facing the biggest public health challenge of our lifetimes? This is after all, a doctor about whom no patient has ever made a complaint; indeed many thousands of Dr Myhill’s patients are fulsome in their testimonies that Dr Myhill’s treatment got them back from the brink to full, or at least better, functioning.
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Article continues at the facebook link above.
 
Jan 18 2021
We Discuss:


The differences between Chronic Fatigue Syndrome, ME & Fibromyalgia

Normal fatigue vs. Chronic fatigue

Conventional tests & treatments for fatigue

What are mitochondria and what are the influencing factors

Dr Myhill’s thoughts on graded exercise & post-exertional malaise

Gut health & key nutrients for mitochondrial function including chronic infections and how do they affect mitochondria

Dr Myhill’s thoughts on the ketogenic diet to support mitochondrial function
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(need to scroll to end of page for podcast)

eta: also available on Youtube
Code: 
https://www.youtube.com/watch?v=eEABoBi194M
 
Barry said:
Not sure it is proven or disproven either way yet?

If stuff is leaking out of your gut into places it does not belong, then presumably there will be all sorts of possible unpleasant effects.
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Exactly. We don't know what fibromyalgia is, and therefore Dr. Myhill should not be making assertive, confident statements about what fibromyalgia is. Or for that matter ME and CFS, which she routinely does.
 
InitialConditions said:
Exactly. We don't know what fibromyalgia is, and therefore Dr. Myhill should not be making assertive, confident statements about what fibromyalgia is. Or for that matter ME and CFS, which she routinely does.
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Unfortunately too many people love ‘assertive, confident statements’ as illustrated by the people offering blind devotion to such as Dr Myhill.
 
Moved from Video: Phil Murrays ME/CFS full recovery story & call for more research funding

This has just come up in a prominent position in a search. It's not by Phil.
I don't know who wrote it but seems to have originated at Bath University? The author seems to be a Sarah Myhill supporter. I also don't know when it was written.

How to recover ME/CFS (chronic fatigue syndrome)
I fell ill in October 2014 and was essentially housebound for six months and ill for a further eight months. During this time, the NHS supported me by carrying out numerous tests to work out why a previously fit, health and energetic person was completely unable to function. When all tests came back negative, I was diagnosed with post viral syndrome, also known as ME/CFS (chronic fatigue syndrome), and was promptly discharged from the system.
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https://people.bath.ac.uk/ac886/cfs/
 
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Firstly I don't have a lot of truck with some of Dr Myhill's views especially around vaccinations.
However when I first got ill and worked out by myself it was ME and then saw the paucity ridiculousness of NHS advice I turned to Dr Myhill for what to do. She has a high online presence, maybe because she's selling stuff but also offers some sound advice.
The bath people post above is almost a perfect reflection of my own illness. Any contact I had with the NHS included an exhortation to keep exercising. Dr Myhill gave me the confidence to reject this and rest and pace.
None of the supplements did anything for me and I wasn't good at the pacing I required. I mean it's really hard to suddenly step down from a super active life to virtually catatonic.
I didn't do keto at that time but this year I have and guess what I'm able to be more active on it.
It's a hateful diet though.
She might not be everyone's cup of tea here but she helped me
 
Trish said:
That is seriously concerning. I hope Dr Myhill's ME patients realise she's talking unscientific rubbish. She seems to have veered further and further into quackland every time I read about her, and now apparently into the outer limits of conspiracy theorist loonie land.
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Same it's really sad as I used to be one of her patients and she really helped me over a decade ago. It's quite terrifying to see, and every time I look it's worse. The stuff on the screenshots here is just so dire I don't know how one begins to get into those kinds of thoughts :sick::(
 
Dx Revision Watch said:
I was concerned, too, that she had been invited to sign the letter to NICE:
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Same. She has been doing stuff for years that means that she cannot be an effective spokeperson for us, not that she ever particularly was. The "take on the establishment" stuff never really helped her patients; I remember finding her outside activities impractical and frustrating as a patient. She was dogmatic and did not think strategically even then. Nobody pays attention to her and that's good, but I hope nobody sees this. Inviting her runs the risk of drawing attention to it.
 
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