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UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list

Discussion in 'Advocacy Action Alerts' started by Andy, Dec 23, 2019.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Last edited: Jan 7, 2020
  2. Andy

    Andy Committee Member (& Outreach when energy allows)

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    A very small example of what differences this project could make. Certainly beats someone sharing the "20 top tips to beat chronic fatigue" type of article with you.
     
  3. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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  4. obeat

    obeat Senior Member (Voting Rights)

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    @And
    Do you have the letter on a file that we can share in N Ireland or has this already been done? We have several contacts in local media we can " coerce" !
     
  5. Andy

    Andy Committee Member (& Outreach when energy allows)

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    PM sent to you.
     
    ladycatlover and MEMarge like this.
  6. Andy

    Andy Committee Member (& Outreach when energy allows)

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    http://www.virology.ws/2020/01/13/trial-by-error-the-uks-proposed-genetics-study/
     
  7. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Great to have this on Virology Blog to reach a larger audience and get feedback from those who are skeptic or hesitant.

    Thank you @dave30th , @Simon M and all involved.

    Might also be helpful if someone had the capacities to respond to the comments.
     
    Last edited: Jan 15, 2020
  8. Andy

    Andy Committee Member (& Outreach when energy allows)

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    7,500 signups! Application goes in tomorrow.
     
  9. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Sign-ups now over 7,800!
     
  10. Joh

    Joh Senior Member (Voting Rights)

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  11. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Just to clarify, this is the last day to get your support recorded in the funding application. The ability to sign-up to express your interest in participating and/or to receive updates will still be there after today.
     
  12. ladycatlover

    ladycatlover Moderator Staff Member

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    Urm, I can't remember if I signed up or not. :oops: I think I might have done some sort of survey, but not sure. Humble apologies. Is there any way I can find out if I signed up already? Or should I just sign up again? Sorry, brainfogged today and can't think.
     
  13. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Easiest to just try again to be honest, it should stop you from signing up again. https://mebiomed.org.uk/get-involved/
     
  14. JemPD

    JemPD Senior Member (Voting Rights)

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  15. ladycatlover

    ladycatlover Moderator Staff Member

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    Put email addy and Post code in on the link. I think I must have done the survey already as it took me to a survey about current events with a big map of USA so I guess that might be about current political stuff going on there.
     
  16. Nellie

    Nellie Senior Member (Voting Rights)

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    I thought I'd signed up but thought I'd check - seems I hadn't... so there is one more.
     
  17. Andy

    Andy Committee Member (& Outreach when energy allows)

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  18. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Code:
    https://www.facebook.com/mebiomed/posts/145440950246116


     
    lunarainbows, JaneL, lycaena and 13 others like this.
  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Pity these ME patients are so abusive and unco-operative towards researchers.
    ;)
     
    lunarainbows, FMMM1, Wonko and 15 others like this.
  20. Andy

    Andy Committee Member (& Outreach when energy allows)

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    I think being able to prove that this isn't the case is just one of the reasons why this project is so valuable - if that number of expressions of support doesn't make a big impression on the funding bodies then I don't know what will.
     
    lunarainbows, FMMM1, Wonko and 13 others like this.

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