UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list

Hopefully that letter will be seen in a lot of local press, it's been sent out as a press release generally to local news outlets.

ETA: Letter is also here
https://www.bedfordindependent.co.u...-more-research-into-chronic-fatigue-syndrome/

 

A very small example of what differences this project could make. Certainly beats someone sharing the "20 top tips to beat chronic fatigue" type of article with you.
https://twitter.com/user/status/1215591643484770305

 

Solve ME/CFS have picked up on it too
https://twitter.com/user/status/1215774671469191171

 

@And

Do you have the letter on a file that we can share in N Ireland or has this already been done? We have several contacts in local media we can " coerce" !

 

PM sent to you.

 

http://www.virology.ws/2020/01/13/trial-by-error-the-uks-proposed-genetics-study/

 

Great to have this on Virology Blog to reach a larger audience and get feedback from those who are skeptic or hesitant.

Thank you @dave30th , @Simon M and all involved.

Might also be helpful if someone had the capacities to respond to the comments.

 

7,500 signups! Application goes in tomorrow.
https://twitter.com/user/status/1219017081674522625

 

Sign-ups now over 7,800!

 

https://twitter.com/user/status/1219549460377866241

 

Just to clarify, this is the last day to get your support recorded in the funding application. The ability to sign-up to express your interest in participating and/or to receive updates will still be there after today.

 

Urm, I can't remember if I signed up or not. I think I might have done some sort of survey, but not sure. Humble apologies. Is there any way I can find out if I signed up already? Or should I just sign up again? Sorry, brainfogged today and can't think.

 

Easiest to just try again to be honest, it should stop you from signing up again. https://mebiomed.org.uk/get-involved/

 

If you follow the link @ladycatlover & click on one of the 'support' buttons, it will come up as 'you have already taken this survey if you signed up already …. lol I know this because I couldn't work out if i'd done it either.

so you don't have to search for it...

https://mebiomed.org.uk/get-involve...Y02eoIFxaAG0NGrUGeRV_EbekixA9E5ixPhX3Tnky9ZB4

 

Put email addy and Post code in on the link. I think I must have done the survey already as it took me to a survey about current events with a big map of USA so I guess that might be about current political stuff going on there.

 

I thought I'd signed up but thought I'd check - seems I hadn't... so there is one more.

 

https://twitter.com/user/status/1219719563866255363

 

Code:

https://www.facebook.com/mebiomed/posts/145440950246116

https://twitter.com/user/status/1219909862328557569

 

Pity these ME patients are so abusive and unco-operative towards researchers.

 

I think being able to prove that this isn't the case is just one of the reasons why this project is so valuable - if that number of expressions of support doesn't make a big impression on the funding bodies then I don't know what will.