UK: National Institute of Health Research: Suggest a research topic

[Andy]

"Providing the most effective health and social care is a huge challenge. There are so many products and procedures in use, with more being developed all the time, but often there is little good evidence about what works and what doesn’t.

We commission and fund projects looking at the usefulness of new and existing tests, treatments and devices and at new and existing ways of doing things. We also look at how to improve public health to see what really works in practice.

To make good decisions about what research to fund we need a complete and balanced picture about which questions most urgently need answering. We ask patients, carers, clinicians, health care workers, service managers and researchers. Whoever you are, we need your voice too. Use the form below, with help from the examples, to make your research suggestions.

Your idea will be seen by our research funding programmes and, if suitable, taken to one of our decision-making committees that prioritises research for funding."

More details at https://www.nihr.ac.uk/patients-car...lp-with-research/suggest-a-research-topic.htm

 

[Invisible Woman]

This suggestion is a fairly obvious one.

Remember back in the.....70s?....Robert Winston, I think it was.

They picked children, can't remember how they chose 'em initially, and then followed up with them over decades.

I would like to see this or something similar. Perhaps pick children of patients from families with history of autoimmune issues or perhaps start monitoring pre teens before the age they start catching EBV etc.

Do thorough blood tests etc every 5 or 10 years if they stay well in between times and finally, start tracing & documenting what happens to certain people when they don't recover from infection as expected.