UK - NHS England online tool and clinics for long Covid.

Kalliope

Kalliope

Senior Member (Voting Rights)
Moderator note: This post has been moved from this thread and following posts are a mix of moved posts and posts from a new thread.
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BBC: Coronavirus: NHS England launches tool to aid long-term recovery

"Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress.

...
Later in the summer, tailored rehabilitation will also be offered to those who qualify, following an assessment.
Each programme will last a maximum of 12 weeks, the Department of Health and Social Care said.

The service, which was developed and piloted in Leicester, will include access to mental health services, community support groups and exercise tutorials, either online or over the phone.
 
Last edited by a moderator:
Kalliope said:
BBC: Coronavirus: NHS England launches tool to aid long-term recovery

"Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress.

...
Later in the summer, tailored rehabilitation will also be offered to those who qualify, following an assessment.
Each programme will last a maximum of 12 weeks, the Department of Health and Social Care said.

The service, which was developed and piloted in Leicester, will include access to mental health services, community support groups and exercise tutorials, either online or over the phone.
Click to expand...

My first response is 'oh-oh', but hopefully that's just a fear unreasonably based on years and years of the NHS being rubbish.

Looks like Sally Singh is leading on this (presumably this is the press release: https://www.dee1063.com/news/local-news/nhs-to-launch-ground-breaking-online-covid-19-rehab-service/) and there's already been an attempt to get them talking to @PhysiosforME :

 
Matt Hancock on Marr this morning,

"Some people have long term effects that look like a post viral fatigue syndrome so we're putting £8M into research and the NHS is putting together a support package for people who have post viral fatigue syndrome from COVID"
 
Adam pwme said:
Matt Hancock on Marr this morning,

"Some people have long term effects that look like a post viral fatigue syndrome so we're putting £8M into research and the NHS is putting together a support package for people who have post viral fatigue syndrome from COVID"
Click to expand...

Well, there is a difference , you know. Important people might have PVFS from covid. Not at all the sort of people who would have hysteria.
 
Moderators - please move this if it's in the wrong thread:

"Coronavirus: NHS England launches tool to aid long-term recovery

NHS England is launching a new service for people with ongoing health problems after having coronavirus.

The government says "tens of thousands" of people have long-term symptoms after catching Covid-19.

"Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress.

The project will be rolled out in two phases, with the web portal launching later this month."

https://www.bbc.co.uk/news/health-53291925

(I can't work out how to give this a quotation format.)

Of course, if it lasts longer than 3 or 6 months it could be ME.
 
The Health and Social Care Secretary has announced the launch of a major £8.4 million research study into the long-term health effects of COVID-19 on hospitalised patients, which has been funded by the NIHR and UK Research and Innovation.

The researchers hope their findings will support the search for treatments for COVID-19 and the development of care pathways that will help patients recover as fully as possible after having experienced the disease.

Symptoms of COVID-19 have varied among those who have tested positive: some have displayed no symptoms, while others have developed severe pneumonia and, tragically, have even lost their lives.

For those who were hospitalised and have since been discharged, it is not yet clear what their medical, psychological and rehabilitation needs will be to enable them to make as full a recovery as possible.

The Post-Hospitalisation COVID-19 Study (PHOSP-COVID), led by the NIHR Leicester Biomedical Research Centre, will draw on expertise from a consortium of leading researchers and doctors from across the UK to assess the impact of COVID-19 on patient health and recovery.

This includes looking at possible ways to help improve the mental health of patients hospitalised with coronavirus, and how individual characteristics influence recovery, such as gender or ethnicity.
Click to expand...
https://www.nihr.ac.uk/news/major-s...-effects-of-covid-19-launched-in-the-uk/25200
 
Kalliope said:
BBC: Coronavirus: NHS England launches tool to aid long-term recovery

"Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress.

...
Later in the summer, tailored rehabilitation will also be offered to those who qualify, following an assessment.
Each programme will last a maximum of 12 weeks, the Department of Health and Social Care said.

The service, which was developed and piloted in Leicester, will include access to mental health services, community support groups and exercise tutorials, either online or over the phone.
Click to expand...

I was about to post a link and saw several others and already done so, and also alerted @PhysiosforME

‘Exercise tutorials’.... what could possibly go wrong! :(
 
The approach would appear to be evidence that the people in charge don' give a stuff about 10,000, or even millions, whose health and QoL might be made permanently worse.

I mean we, amongst others, have been drawing their attention to the issue for decades, so they can't claim ignorance.

Lets just inappropriately accelerate the planned rollout of a cheap internet based CBT and GET like approach to solve every problem.

Seems they are happy just to be seen to be doing something, doesn't matter if they suspect/know it will only make the problem worse - that's the next guys in office problem.
 
Trish said:
Good to see the twitter link up between @PhysiosforME and the person running this. I forsee a massive battle between the Chalder/Wessely approach, and the sensible pacing approach. I just hope sense wins.
Click to expand...

Well, the 6 month mark is where the claims for PHI should start going in. Earlier for benefits claims.

Very important to get the illness denial in first. If you can label a person as having health anxiety, a shirker, malingerer, having abnormal illness beliefs, being a member of a support group etc., and get that on record first then it makes claims a lot easier to deny.

I rather suspect the NHS Portal will be a handy way of identifying those that might cost someone some money further down the line. It could be helpful and do lots of positive things but.....

I really feel for some of these poor sods who have no idea what's coming. That their battle with ill health will only be a part of their troubles to come. Literally,like standing at the side of a road watching a car crash happen in slow motion in front of you.
 
Invisible Woman said:
I really feel for some of these poor sods who have no idea what's coming. That their battle with ill health will only be a part of their troubles to come. Literally,like standing at the side of a road watching a car crash happen in slow motion in front of you.
Click to expand...
yeah i got a chill down my spine when i read it this morning. But of course when we try to alert them we will be seen as 'being negative', especially as some of them who no doubt do have a 'regular' post viral fatigue & would have got better in time regardless, will be 'helped' & therefore 'prove' the approach works. God help those who have just started their battle with ME. It makes me want to cry.

At least those who are a bit sceptical/critically thinking oriented will have the 'covid is completely new & therefore the NHS might not have it correct, to protect them when their experiences start to radically not match what they're being told. At least a little i hope.
 
Invisible Woman said:
I really feel for some of these poor sods who have no idea what's coming. That their battle with ill health will only be a part of their troubles to come. Literally,like standing at the side of a road watching a car crash happen in slow motion in front of you.
Click to expand...

Yes, this is exactly how I feel too. And then there will be the crosstalk between those who managed to spontaneously recover, giving random advice to those who weren't so lucky.
 
Adam pwme said:
Matt Hancock on Marr this morning,

"Some people have long term effects that look like a post viral fatigue syndrome so we're putting £8M into research and the NHS is putting together a support package for people who have post viral fatigue syndrome from COVID"
Click to expand...
I can see the psych lobby trying to grab this money for badly run cbt and get studies.
 
Really pushing the boat out :rolleyes:
Patients who have been in hospital or suffered at home with the virus will have access to a face-to-face consultation with their local rehabilitation team, usually comprising of physiotherapists, nurses and mental health specialists.

Following this initial assessment, those who need it will be offered a personalised package of online-based aftercare lasting up to 12 weeks, available later this Summer.

Accessible, on-demand, from the comfort of their own home, this will include:

  • Access to a local clinical team including nurses and physiotherapists who can respond either online or over the phone to any enquiries from patients;
  • An online peer-support community for survivors – particularly helpful for those who may be recovering at home alone;
  • Exercise tutorials that people can do from home to help them regain muscle strength and lung function in particular, and;
  • Mental health support, which may include a psychologist within the online hub or referral into NHS mental health services along with information on what to expect post-COVID.
Click to expand...
https://www.england.nhs.uk/2020/07/nhs-to-launch-ground-breaking-online-covid-19-rehab-service/
 
erm...face to face meeting with a panel of medical people?

Presumably all in the same room, in fully PPE/hazmat suits, in buildings known to be super sources of the virus?

Sounds a sensible approach to deal with those who've 'proven' susceptible to the virus, during a pandemic, before anyone knows how long any immunity lasts.

I can't see any reason for anyone to have any concerns at all, especially those who've been badly affected by the virus.
 
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