UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

I'm not sure - I have no direct experience.

However, it may be:

• a way to generate useful views from constructive elements/participants re translating the guideline into practice;
• a useful way to moderate the behaviours of the destructors (weirdly the medical professional bodies) - let them have another opportunity to complain and thus calm everything down a bit.

 

Video is now available

Code:

https://youtu.be/D8ayxBSsk_M

https://www.youtube.com/watch?v=D8ayxBSsk_M

This webinar now has its own thread:
2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

 

Does anyone know of a concise summary of the whole loooong NICE guideline saga?
A little history and context, plus the key changes.
Similar to Brian Hughes' excellent video posted above but in written form?

 

While this blog is excellent (as always @Michiel Tack ), my guess is it's a bit too basic for the purpose in question but I'll pass it on.
I'm asking on behalf of someone looking for material that can be used directly or that can be easily adapted without too much work to educate some psychologists.

 

Awesome presentation, just listened to it - calm, coherent, informed --- thanks to the Norwegian ME Association & Brian Hughes

 

Already has been.

 

Like it never happened. Actual pervasive refusal, oh the irony of how much psychological projection this ideology produces.

https://twitter.com/user/status/1511356598584717313

 

The Stockport Service actually gets very good feedback and support from the local ME group.

 

Sad that they choose to say CFS/ME. Perhaps it is a recycled ad, but even so.

 

That’s good to hear.

 

One comes to understand how lucky PWME were to have Ilora Finlay involved:

See the account of her attempt to provide shelter for a Ukrainian family.

https://www.theguardian.com/world/l...more-arms-live#block-625293fc8f081f653cd8cbc2

 

Many many stories on that page, i dont see the relevant one? I'm not good at sifting/finding key bit from a lot of info, i cant see it?